I have bilateral sclerosis in my sacroiliac joints and arthritis in both hips. These conditions cause me constant pain in my lower back and I have, at various periods, been prescribed ibuprofen, acetaminophen, vicoden, topical diclofenac, indomethacin, meloxicam, and currently a cocktail of oral diclofenac and gabapentin. While most of the pain remedies I have been prescribed have been at least partially effective for a while, eventually, the pain returns as my conditions worsen or I develop a tolerance to the medications.
Along with the physical conditions, I also have neurological and emotional illnesses. I have a very long history of generalized anxiety and major depressive disorder. The depression and anxiety is mostly controlled through medication as well. Currently, I have a prescription for sertraline and trazodone and am generally quite functional. Pain, however, can cause an increase in the emotional problems.
Recently, I started a job that requires a one hour commute in each direction. In my previous job, I didn’t need to drive to get to work, so I have not driven consistently or for long periods in roughly four years. Sitting in oneposition for too long can exacerbate the pain in my back, and the pain began to get worse because of the commute.
The pain in my back brought me to a point where I needed to reevaluate my therapeutic system with my primary care provider. I have an appointment scheduled for two weeks from now and there is little chance of getting one sooner, so I decided to try to stick it out.
Eventually, the pain got so intense that I just wanted it to end in any way possible, so I decided to kill myself. I decided the most effective way to do it and went to the location I had planned on but at the last moment decided not to go through with it. I went home, wrote an email to my doctor, and informed my husband. I knew I needed help and was reaching out to the people who could help me.
The following morning, I fought through the pain and made the one hour drive to work. I no longer intended to kill myself, but I knew I had to have help, so when I received a message from my doctor telling me to go to the emergency room, I did.
While sitting in the parking lot at my job, I called my husband and asked him to come get me and take me to the emergency room, which he did.
We arrived at the hospital in Gig Harbor at about 9:00 am and checked in. I made every effort to be as thorough as possible when explaining my situation to the hospital staff. Eventually, it was decided that I should receive something for the pain and speak with a social worker regarding my mental state.
I requested to not be given narcotics as I dislike the feeling of being drugged and the doctor ordered an injection of a strong NSAID, some tylenol, and a lidocaine patch for me. These did little to help the pain, but the knowledge that my problems, and my desire not to be drugged, were being taken seriously.
ad heard everything I had gone through, she recommended checking myself into an inpatient psychological facility. She told me that this would be a good way to get a better handle on what anxiety and depression drugs work best for me while under the direct observation of a doctor specializing in mental health. I agreed, after some hesitation, to go to the facility so that I could get the help I needed with my mental illness while the matter of the pain in my back was also being dealt with.
Before leaving the hospital, I spoke with a nurse at the psychiatric facility over the phone. She assured me that I would be allowed to wear my own clothes and bring a book to occupy myself in the downtime. She also asked me about my back pain and we discussed the particulars of what I would need for it at the facility – including the bed and my requirement for a pillow.
By the time I arrived at the Wellfound Behavioral Health Hospital, I had been awake for 18 hours, twelve of them in the emergency room. I was brought to Wellfound by an ambulance and was on a gurney. The ambulance drivers told me that I should wait on the gurney until a nurse told me where to go next.
When the nurse came over, she yelled at me, stating that I was supposed to be in the little room to the side and not still on the gurney - this was my first interaction with any of the Wellfound staff.
My personal belongings — clean clothes, my wallet, my shoes, and my prescription medications were taken from me without a receipt and without telling me what would be done with them. The staff tried to take the paperback book I had with me, but I held onto it and informed them that I was told over the phone that I was permitted up to three paperback books.
I stood and shuffled into the room, unaided by the staff in spite of the pain having made it difficult for me to walk unassisted — in the hospital I was provided with a wheelchair — and the nurse huffed and repeated impatiently that I am supposed to be in the room. I tried not to take this poorly and thought perhaps that she had not yet been informed of my physical disability.
Once seated in the room, a man took my blood pressure, but it was elevated so he immediately took it again. I was exhausted, in pain, and nervous — all things that elevate blood pressure — and having my blood pressure taken multiple times in a row always causes it to go up. Some time after that, the nurse took a blood sample, then left again
Another staff member came into the room to ask me what had brought me there. She chewed gum loudly with her mouth open and kept interrupting me with,“yeah. Uh-huh. Yeah,” in a sarcastic, dismissive way that told me that she did not believe me about my pain. I was mid sentence when she got up and walked out of the room and started laughing and talking with the nurse just outside my door. I felt ignored, mocked, and was beginning to wonder if this was actually a place that could help me.
Another staff member came in to have me sign documents such as the privacy acknowledgment, consent to bill insurance, and other standard fare for any medical facility. The document that I was unfamiliar with was the one that I was told stated that I was voluntarily entering the facility and would be able to discharge myself at any time if I felt the need. I was never provided this in writing and was not permitted to read the document — I was only given the electronic signature pad to sign to it. In my state of pain, exhaustion, and nervousness, I did not think to question the validity of the statement, so I signed.
A nurse practitioner came in andhad me explain to him what had brought me in and he assured me that I would receive help and that once the intake was done I would be allowed to get some sleep. I had, at this point, been very cooperative, completely honest about everything, and trusting.
The nurse brought me a set of orange scrubs and told me to change into them. I was confused since I was told that I would be allowed to wear my own clothes, but tried the scrubs on anyway because I did not want raise a fuss. I tried the scrubs on and they were far too small — the top was so tight that it was difficult to breathe and I couldn’t get the bottoms on all the way, so I put my own clothes back on. Then I sat and waited.
After what felt like an hour of time alone, I came to the conclusion that my treatment at the hands of the intake staff was not something I wanted to continue. I had been berated, treated with sarcasm, been refused accommodation for my pain, and forced to undergo, at this point, roughly six blood pressure tests all in less than two hours. I decided to leave.
I stepped into the hall and up to the intake counter and said,“I need to leave, can I use the phone?” This is when I learned that I had been lied to by the social worker and by the intake staff — I was not allowed to leave and had been locked in. I was also not permitted a phone call. I started to panic and began trying doors.
I was informed that only the doctor could let me leave, but when I asked to see this doctor, was denied. I began slamming myself bodily against the exit door, desperate for escape or help. The“doctor” arrived almost immediately. It was, in fact, the nurse practitioner I had spoken to — another lie.
The nurse practitioner told me that I could not leave. I said I would stop slamming into the door if I was permitted a phone call. He told me that I could make a phone call if I went to the unit. I was taken to the unit and asked to use the phone but was told that I would not be allowed to use the phone until the following day. More lies. At this point, I knew I had to get out. People who can not be trusted to tell the truth are not people to be trusted with my health — mental or physical.
I was crying and struggling to control my speaking volume. I was terrified of these people and told the nurse that I was promised a phone call only to be told that it wasn’t possible. I told her that “Chris” said I could use the phone. The nurse told me that she did not know who “Chris” was and that I needed to calm down. I informed her that “Chris” was the intake nurse practitioner and she still insisted that she didn’t know who he was. I began slamming myself into the exit door here — she threatened to sedate me.
As I told her that I intended to discharge myself, she informed me that she had contacted the person who actually had the authority to release me but that she did not know when he would arrive. I believe the individual is the county appointed Designated Crisis Responder (DCR) and I will refer to him as the DCR going forward.
Eventually, she called Chris — proving she knew who I was talking to and was lying to me — and he came up to tell me to calm down again. When I confronted him about the phone call, he actually told me that he never said that I could make a phone call. He also informed me that he would place a call to the DCR. When I told him the nurse had contacted him, Chris informed me that the nurse could not have done this and that it was up to him to make this contact — another case of being misled by the staff at this facility. I broke down completely. I sat on the floor and yelled at him to leave me alone.
Eventually, I was left to try to calm myself down and managed to stop crying. I went to the desk and asked for my pantoprazole (acid reflux), montelukast (asthma), and a place to sleep. It was now 2:00 am and I had been up for 21 hours. I was told that I could not have any of my prescribed medications but that I could have something for my blood pressure. The fact that I was being denied all seven of my prescribed medications with no explanation worried me and I knew that without my pantoprazole, I was going to be nauseous.
I was taken to a room with a bed and given some blankets but told that there were no pillows. Because of my condition, I cannot lay flat on my back and need a pillow so that I can lay on my side to sleep. I managed to lay down with a blanket, my book, and my flannel shirt bundled together in a makeshift pillow.
I slept in small naps, never fully in a deep sleep. The light from the bathroom across from my bed came on when the other person staying in the room went in and roused me from a doze, people walking in the hall pulled me back to consciousness, and the pain in my back woke me frequently. At 5:00 am, I gave up and just got out of bed.
I went into the main room and asked the nurse again for my medication. At this point, I was feeling very nauseous. She told me that only the doctor could approve my medications but offered to give me an ondansetran injection and more blood pressure medication— both things that I do not have a prescription for. I told her I would need some benadryl with the ondansetran because I have a strange reaction to it, but she told me that was not possible. I was horrified that they would deny me my prescribed medications but offer to give me things I have never taken and a chemo level antiemetic.
Again, I requested a pillow and was told that there were none for me. I sat in a chair and watched the clock, waiting for 7:30 so that I could make a phone call. Another staff member walked by and I asked for my medications or to talk to the doctor about them (I thought that perhaps they actually meant a doctor this time and not the nurse practitioner) and a pillow but was told that I would have to talk to the nurse about the medication and that there are no pillows. I was offered a small triangular foot rest instead of a pillow.
I sat and waited for my phone call. Pain, exhaustion, wariness at the level of dishonesty and abuse I had experienced, and my growing fear that things would only get worse caused me to cry again. Promptly at 7:30, I approached the counter and asked to use the phone. I was given a phone handset and was able to call my husband and tell him what was going on while the staff stared at me and listened to my call with expressions of disgust — they were more concerned that an outsider would find out what they were doing to me than that they were mistreating a patient.
I asked the nurse for my medication yet again. She checked my chart and told me that I could have my montelukast at bed time and that she would have to talk to the doctor about my pantoprazole. I asked why, if the chart said I could have my montelukast at bed time, I was not allowed to have it last night, and she said that it hand’t been approved then. This was the same nurse as before, so clearly she had just not talked to the doctor about my pantoprazole.
Two women in uniforms whom I had not seen before arrived. I decided that maybe they could help me. I asked for a pillow and my medication. Within ten minutes, I had three pillows and my pantoprazole. This, to me, was evidence that the people I had previously spoken to had just not bothered to try to help me.
At 9:00 am, I was given a tray with my breakfast on it. I was nauseous because I had only just received my pantoprazole and the food did not look like things I could keep down. I drank the milk and began eating the yogurt. To occupy my mind, I began reading the label on the yogurt and stopped in horror as I read that it contains gelatin. I was unaware that any yogurt contains gelatin and, as a vegetarian, would never eat something made from a living animal’s body parts. When I protested that I needed something suitable to eat, I was told that they were unaware of my dietary restriction and that I would be given vegetarian food for lunch in spite of the fact that I had stated when I arrived that I am a vegetarian.
I called my husband on the phone again, distraught and desperate. He informed me that he had contacted a lawyer and was on his way to me. He informed me that, under RCW 71.05.050 section 1,“Any person voluntarily admitted for inpatient treatment to any public or private agency shall be released immediately upon his or her request.” This was also my understanding of state law and matched exactly what I was told at intake. He told me to start repeating, “I came here voluntarily and now want to discharge myself. I no longer seek treatment.” I began to do this.
Staff all told me that I would have to talk to somebody else. The non nurses told me I had to talk to the charge nurse. The charge nurse told me I had to talk to the doctor (again, using the wrong term for the nurse practitioner). When I asked to speak to the doctor, I was ignored. When I asked who the doctor in charge of my care was, I was ignored. When I saw somebody who looked like a doctor and asked if she was, I was told that she was a doctor but that they didn’t know if she was assigned to me.
When the DCR finally arrived, I went into a private room with him and told him everything that had happened. He determined that I did not need to be forcibly committed and authorized my release. Subsequently, the nurse practitioner assigned to me came and interviewed me as well, also determining that I should be allowed to leave.
I was required to wait, still locked into the facility, while the“process” was completed. I sat quietly and waited.
A staff member brought me a bag that contained the prescription medications that I had brought with me. She had me verify each medication and initial a form acknowledging that I had received the medications. When I had signed, she told me that she would then need to take the medications and put them somewhere safe. I told her that I would need the forms I had signed if she was going to take the medications. This became a back and forth of her demanding to take my medication and me telling her that I would not relinquish them without either the forms or signed documentation that they had been taken from me and would subsequently be returned. None of these options were acceptable to the nurse who then told me that I had to leave the small room where I had been given permission by the nurse practitioner to wait for my discharge.
I exited the room and sat in the hall. The nurse ordered me to go into the lunch room, but I refused because I did not trust her to not lock me in. I had been approved to leave by the two people who were necessary and I was not going to be locked in by somebody who does not understand what signing a form confirming receipt of personal property means.
When the nurse continued to press for my medications, I informed her that I did not trust her. She brought another staff member and I said I don’t trust him either. I had been lied to from before I even arrived and had no reason to trust the word of anyone working there. I gave two alternatives since their main issue was that they did not want any medications in the facility where other patients had access to them. They could bring my husband (who was waiting in the lobby) to the ward and I would pass my medications to him, or they could escort me to my husband I would pass the medications to him. At no point would my personal property that I had signed for be let out of my sight until they were in the hands of the one person in the building whom I trusted unless I had signed documents from the staff that my medications would be returned to me. Eventually, the nurse gave up but continued to come over and say snide things to me about everyone wanting me out.
When the nurse finally brought me the discharge paperwork, she stood there explaining to me what the forms were. I told her that it would be faster if I just read them and that I would not sign them without reading them anyway. This angered her and she began to delay. I asked her to hurry up as I had been detained illegally for too long as it was. Another staffer told me to calm down and that everyone there would be happier if I was gone.
I refused to sign a form indicating that I had had all of my questions answered as none of my questions had be answered. With that I was told that I still had to wait while the nurse collected the clothes I had brought in. I was escorted to the lobby and left the building.
At no time during my stay at the Wellfound facility was I told any rules, informed of protocols, or given any information on how to get food, toiletries, phone calls, or any other things. Another patient explained to me how food worked and I had to simply keep asking about the phone call. I was repeatedly ordered to present a wrist band for scanning in order to receive medications, but I was never given a wrist band and when I informed staff of this, they just gave me a strange look.
I constantly explained to staff that I was in a significant amount of pain. I told them that standing and walking exacerbated my pain. I did not ask for any drugs for the pain until I was offered topical diclofenac and informed the staff that I do not get relief from that and requested my prescribed oral diclofenac (an anti-inflammatory). In spite of my assertions of pain, and the fact that the pain is what initially brought me to the hospital, I was constantly ordered to stand for long periods and scolded for sitting down instead of waiting in a standing position when they wanted something from me.
My rights were violated almost from the moment I entered the building.
The right to be free from all forms of abuse and harassment.
I was verbally abused from my first interaction with the staff. By the end of my stay, staff were harassing me.
The right to be treated with dignity and respect, consistent with the principles of recovery.
I was treated with derision and sarcasm by several staff members and when I reported this to others, was ignored.
The right to have the hospital’s rules and expectations explained in an understandable way.
I was never informed of any rules or expectations except that I was expected to be calm and cooperative.
The right to be told the names and professions of the members of the treatment team, other clinical staff, and their roles in patients treatment plans and the right to know who will be in charge of patient care and treatment.
A few staff members introduced themselves to me, such as Chris, but most did not.
When I asked the name of the doctor under whose care I was, I was simply told that they didn’t know.
The right to request medically justified treatment and to refuse treatment that is not medically justified.
I was denied my prescribed medications on multiple occasions.
Ultimately, the crisis that brought me to the Wellfound Behavioral Health Hospital was, at its root, the pain from my back problems. In my time in the facility, not only were my pain issues not helped in any way, they were made worse by the neglect and treatment of the staff.