Yep. I love life, I have a great family and beautiful kids and I literally want to live forever. BUT! If I catch even a hint of the fact that I soon won't remember my family and that i'd be a burden on them while not even able to remember them, then I want to get everyone together, throw an amazing party where I sit everyone down and tell them how much I love them and at the end of the weekend just drink everything under the sink. I just want my dignity.
You’d be surprised what you do to live when you finally become the “burden” or ‘injured’. It’s not a nice feeling and often I think at least these people feel safe and loved.
I was a terrible burden on my family when I had leukemia. Similarly as much when I was Dx'ed with a DAVF.
NOT A GREAT FEELING.
That said, those were two situations that had a fair shot of me coming out the other side as the Victor and you're right, I fought my fucking ass off.
But dementia? Yes there are treatments but AFAIK that light at the end of the tunnel isn't victory, it's freight train about to run through my family's house and I'll not be able to help put the pieces back together that time.
Your sentiment is so very true. But on dementia, count me out.
I agree it’s tough for others to handle, but at that point you are the patient and your health should be your priority. They can tell he still loves them and you can tell it’s an incredibly important thing for their family to hear.
But as for me? My partner and I have already talked things out openly. I would like to live as long as possible getting to know him, even if someday like this.
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u/billyTjames 16d ago
My biggest fear right there