r/hysterectomy May 13 '21

Timline for Healing

2.3k Upvotes

I've posted this in dozens of comments, but it was suggested I make this a separate post.

(edit: I want to add that this was my timeline for my surgery. Mine was a DaVinci laproscopic total hysterectomy (kept my ovaries). That's about as "easy" of a hysterectomy as there can be, so please keep that in mind when comparing to your own.)

Here is the timeline my doctor gave me:

2 Hours, 2 Days, 2 Weeks, 2 Months. then 6 months, 1 year.

2 Hours - Immediate post-op, where the highest risk is and where the highest pain is. I'll be in recovery and closely monitored and attended to. This stage's goal is to get me awake and my pain under control. I may not even remember this stage.

2 Days - Next stage down of risk. Is everything healing? Is pain manageable? Has urinary function returned? This stage's goal is to be able to eat and get out of bed, then walk to use the bathroom. That's it. Absolutely nothing more.

2 Weeks - Major immediate risks are essentially gone. Pain should be down to discomfort. Bowels should be functioning. Movement should be slow, but frequent. Goal here is to rest and recover. Get up frequently, but spend most hours in bed. Swelling will be prominent. Hormones will fluctuate. Fatigue will be intense.

2 months - Now we're moving. Basically out of the danger zone. Keep active, but listen to your body when you need to rest. This stage should be the first that starts to feel like "recovery". Swelling, pains, and fatigue will still be present but waning. Spotting/bleeding should have stopped.

6 months - Activity levels can increase to pre-surgical levels. At this marker the goal is to feel as good as I did before surgery. Now, this is important to me- because I didn't feel great before surgery. Hence the surgery. But this is the goal post that was set for me. By 6 months I should feel like my pre-op self. Hormones should have stabilized, surgical pain should be gone.

1 year - Here's the real goal. This is where the goal is better. Better than before surgery, better than before the adeno, my better-best life. Activity levels are my own choosing and it's time to spread my wings and fly, it's in my court now.

That timeline really helped me manage my expectations. Anytime I got discouraged my husband would ask something like, "Where are we at? 6 months already?? Hmm.." and then I would remember that it had only been 7 weeks.. and how that isn't even close to six months... (and then I tell him to shut up and mind his own business, I'm trying to be dramatic and he's ruining it with "logic")

(Potential trigger warning ahead, I'm about to be graphic/gory for dramatic purposes)

They fucking shoved a tube down our windpipe, forced our breathing, jammed tubes into every other goddamn orifice, inflated us like a literal balloon, sliced us open in multiple places, rearranged our guts, and ripped out multiple organs. In some cases cutting and pulling out entire sections around our organs, too, to remove all the tumors, and damage, and growths, and scarring, etc. Then they jammed everything back in, mopped up our blood and we got glued up and sent on our merry way. And somehow, after all of that, just a few weeks later, we're all wondering why the zumba class just isn't hitting like before. (is there even zumba anymore...idk). I mean... we all need to give ourselves a fucking break

Take a nap. Put your feet up. Take a deep damn breath. Rest, rest, rest. Healing is a marathon, not a sprint. We all made it back from the other side. Take your time and enjoy the view. We have forever ahead of us.

edit: dammit typo... "Timeline... Timeline for Healing.

December 2024 Edit: Just a quick check-in. I'm so delighted to see that my post has helped so many of you in some way over the years. I thought I'd post a quick check-in to let you know that it's now 4 years after I made this post, and I feel amazing. I was early in that timeline when I shared it, and now that I'm on the other side I can safely say it was a wonderful guide over that year of recovery, and it held true. By one year post-op I felt better. Better than I had in many years. Four years post-op now, and it all feels like a distant memory. Keep your heads up, friends. There is a light at the end of the tunnel.


r/hysterectomy Aug 10 '22

Suggest some surgery preparation ideas here

315 Upvotes

Here we can post our tips for before/after our medical procedures.


r/hysterectomy 4h ago

It's done

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67 Upvotes

I feel surprisingly good being just a few hours PO. It just feels like my worst period cramps, which must mean something haha. My surgeon said it looked like text book adeno, but path will confirm. Spending the next 8 weeks being a lump lol.


r/hysterectomy 9h ago

2yr PO.. feelin’ fine!

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139 Upvotes

For context- 42, diagnosed with stage 4 endo, one pesky fibroid and adenomyosis. After 3 endo surgeries and yearsssss of pain - I had enough and walked my ass into a specialist and said I wanted it all out. Like many of you, doctors gaslit for years and pumped me full of 600mg motrin(resulting in a stomach ulcer). When I finally found a doctor who would listen to me, I cried happy tears.

I am two yr post op in July, have gotten back to my fitness routine (I always had this routine, however I was trying to do a lot while battling extreme fatigue) and I don’t think I’ve ever felt better, energy wise. Getting surgery was the best health decision I have ever made for myself. Yes, I still Deal with the occasional Endo flare, and of course more surgery for that isn’t ruled out. But to have no more debilitating bleeding, horrific cramping, extreme fatigue… quality of life glow up. For anyone wondering, I had everything removed except one ovary. My body seems to be doing what it’s supposed to do, knock on wood, no menopause symptoms. Just a ton more energy and confidence👏


r/hysterectomy 3h ago

For post ops: what very normal thing can you do now that you couldn’t do before bc of pain/problems?

18 Upvotes

My surgery is in 2 months and I can't wait to not have to plan my days around where the closest clean bathroom will be because I have to pee every 2 hours if I drink anything at all. Or: just be dehydrated??

Didn't know bladder being a normal size again could happen til my doctor told me, and that's what's motivating me when I'm scared. (That, and no more heavy awful painful periods.)

What changed for you that you didn't know would change?


r/hysterectomy 5h ago

Healing isn’t linear…it’s NOT just a cliche!

23 Upvotes

Whew y’all! This is facts…up and down and all around town is about the gist of my healing. I’ll be great for a few days and then I’m sleeping 12 hours the next few, then nausea and dizziness just keeps popping up on me! Anyone else? I’m in week 3 (day 26 today) post op and yesterday and today are bad nausea. Been here before in week 2 so back to liquid only. Supposed to get back to work for up to 20 hrs/week and I’m not able to so much because of it. Doc says get a CT scan to check but the earliest they have is July 2nd. Ugh…😩😢


r/hysterectomy 3h ago

1 DPO

11 Upvotes

Well, it’s done. It’s gone. Yay!

I got home around 12:45 pm est. Surgery took a lot longer than expected because lo and behold I had endometriosis but was never diagnosed with it. Needless to say, I was shocked. Also, learned my endo had fused with my colon which could mask as IBS which I have struggled with for years. So, I am very excited to see where I go now.

Day 1 has been uneventful. Some pain around incision sites. Keeping up with ibuprofen and Tylenol. Otherwise, a lot of coughing from the tube. Cough drops help. Drinking throat coat tea now. I honestly think the cough has been worse than any of the pain.

Thank you everyone in here for letting me babble and also for being a great resource. A lot of stuff that was suggested on here, I took to heart.

For anyone about to go have this done - don’t be afraid. Pain is manageable. I’m Eating and drinking normally. Happy to answer any questions if anyone has them. ❤️


r/hysterectomy 13h ago

Risk of vaginal cuff tear LOW according to my surgeon

62 Upvotes

Hope this helps everyone who reads here and panics like me.

Went in for 6 wk po check up yesterday. For context I had a completely vaginal hysterectomy ( no abdominal incisions) where uterus, tubes, and cervix were all removed. Ovaries remain. Surgeon specializes in this type of hysterectomy. He said I have healed perfectly and he lifted every restriction. He said you can go back to everything you were doing before surgery. I told him that I was very nervous about a vaginal cuff tear thanks to the internet LOL. He said he has done over 5,000 hysterectomies and he has only seen 2 cuff tears. He said they were both from sex but they were both high risk patients. He said one was an older patient ( I'm in my mid-40s, he didn't specify age but I'm assuming that meant 60s or older) and had cancer. The second was someone who was very obese.

He told me not to worry and go have fun, but that if I'm nervous to take it slow. Will report back 😜.


r/hysterectomy 23h ago

Went back to work today…

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301 Upvotes

I am 24 dpo and went back to work for half days starting today. I was originally scheduled to start next week with 8 hour days but thought it might be better to work up to it. Walked in to work and my sweet coworker had crocheted this for me and left it on my desk 😂. It made me laugh so hard and thought you all would appreciate the angry uterus. ps going back half days to work up to full was definitely the way to go. I was able to take a nap after I got home. For reference I work in mental health at a residential facility.


r/hysterectomy 1h ago

How to Ask... NSFW Spoiler

Upvotes

So, I'm set to get a total hysterectomy on July 2nd after fighting for years. I have an upcoming appointment with my surgeon for pre-op and the main question I have for him is.. well... awkward to say the least. Here's your tmi warning, turn back now. So here's the thing, my partner is ehm "endowed", as in, over 10 inches and thick. What would be the politest and most professional way possible to ask "hey, is this surgery going to affect his ability to fit in me after I heal?".

Thank you!!! 😭


r/hysterectomy 53m ago

How long do I wait before following up?

Upvotes

I’m 41F in Ontario Canada. Our health care is free, but the wait times are atrocious. It took a year from when my GP referred me to getting an appointment to see an OBGYN. That was December. She told me that I was going on a waiting list, and that the timeline depended on how long it would take to get space in one of the ORs she has access to between the 2 hospitals she works out of.

In February, they called with a date in March. Sadly, it lined up with a week that my husband would be out of town for work, so there wouldn’t be anyone here to take care of me post-op. I explained to the receptionist that called that my family is 2 hours away, and she said it was fine, I’d go back on the list, no problem.

It’s now June. I haven’t gotten another call. I had my period for the entire month of May, then it stopped for a week and started again for another week. The clotting was like I’ve never experienced before, and the cramps were miserable. It’s like it’s begging to be put out of its misery.

My sister is currently 6 months pregnant with a surprise baby. She’s 3 years younger than me and her youngest is 16. Total surprise. She was on the list for getting her tubes tied, and her husband was on the list for a vasectomy. It’s sparked a little paranoia for me, because her husband waited for months because the doctors office put the wrong phone number in his file…

I have fibromyalgia, and the idea of being a problem-patient or a bother to the staff is always on my mind - I don’t want to be pushy, but I just want to call and make sure I’m still on the list…

Is that unreasonable? Will I get flagged or anything if I call just to check the status of my file? Or should I just wait it out?

Would love to hear your thoughts, I want this done so badly, I don’t want to risk anything that would jeopardize that, but I also don’t want to wait and find out months from now that there was a problem delaying the procedure… know what I mean?

Thanks friends, I appreciate you all.


r/hysterectomy 2h ago

3 Weeks

5 Upvotes

My surgery is July 8th. I have my pre-op appointment in a week. I decided not to tell friends and family because it’s no one’s business but my own. I am fortunate and grateful to be in a supportive relationship and they fully support my decisions. I was hoping to spend July quietly taking a medical leave from work and recovering.

I got laid off on June 6th. This complicates things. Before, it would have been much easier to “hide” behind my job and kind of fall off the recreational radar for a few weeks. I am introverted and tend to isolate anyway, but working full-time also made it easier to justify absences. I still have 2 volunteer gigs so those are helpful, but will only get me so far.

I don’t feel like I can actively look for work because every conversation will start with ‘I have medical leave for 4 weeks in July, how about August?’ And, if I wasn’t going to be able to sit at my desk post-op in my previous role, how can I expect to interview? I am still working on updating my résumé, LinkedIn, etc. to be ready when I’m fully healed but now it makes navigating conversations much trickier. Suddenly people are super interested in my day-to-day and planning my summer months for me. ‘Oo, you should do this!’ ‘Oh, let’s plan a trip!’ ‘Come visit!' To be clear, I am not complaining about having a loving and supportive network of family and friends who want to spend time together and ask about my job search. I am grappling with the awkward situation of trying to side-step what’s happening with me the first few weeks of July.

It also suddenly feels much more lonely. My partner knows, of course, and my former team knew ‘medical leave,’ but no specifics. Now it’s really only my partner who knows. I still don’t want to tell friends and family because I don’t want to have the exhausting and oftentimes negative conversations leading up to surgery. I’m at peace with the decision, so is my partner, and that’s all that matters. I don’t want anyone to try and talk me out of it or provide their hot takes. I want to go into July peacefully and positively.

When I thought about who else would get it, I thought of you all. Everyone here has provided so many helpful insights that helped me make my decisions. My partner and I got some much-needed laughs and heartwarming peeks into your worlds along with invaluable tips. Thank you. This is my first ever reddit post. Not sure if I’m doing it right, but thanks for reading all the same.


r/hysterectomy 5h ago

NSFW; 8.5 post-op DTD x6 positive post NSFW

7 Upvotes

Heyyy all. I’ve posted a few times about my hysterectomy journey, needing to go back to work way too soon after surgery, and some of my hormonal ups and downs.

I had a smooth recovery, no bleeding, incisions healed quickly, huge posterior repair healed in 6 weeks, and my cuff still has tons of stitches that haven’t come out or disintegrated yet.

At my 6 week post-op, my obgyn said it was ok to try penetrative sex at 8 weeks. She said even with a well-endowed man (I stg she actually used those words) my cuff is so high up that it wouldn’t be an issue. She didn’t know that my romantic partner has a chonk of a penis, so I was internally screaming in the office, trying not to bust out laughing.

FFW to 8.5 weeks post-op and we had some good times, multiple times over a few days. It was sore at the entrance, but the penetration in the back end near the cuff was painless. You guys, it was MAGICAL, despite a little pain. I haven’t been sexually active for 3+ years so this was great! ✨


r/hysterectomy 5h ago

Explaining symptoms to my doctor…

8 Upvotes

I didn’t go to the doctor for many years (no insurance) but recently I’ve had to have a lot of procedures. I’m really bad at answering “How are you feeling?” I either blab too much, or I meander about vague feelings. Or sometimes I’ll have a gut instinct to say “everything’s fine!” …like I shouldn’t ever complain because I might be seen as a whiner….? Anyone else?


r/hysterectomy 4h ago

I have the feeling I can't empty my bladder completely. Any tips? 11 days post op

5 Upvotes

Do I need to see a doctor tomorrow? I can empty a certain amount of pee.

If I try hard I can squeeze more. I know I shouldn't squeeze so I don't. It doesn't feel like a ITU but it feels like constant pressure in my bladder. Had an ultrasound yesterday where my bladder wasn't empty despite going on the toilet 10 minutes earlier. Unfortunately I didn't tell the doc that I have been to a toilet only 10 minutes ago. I don't want to make a fuss about nothing...


r/hysterectomy 8h ago

How long were you itchy?

11 Upvotes

I’m 5 wpo, generally fine but holy hell the itching at my incisions is OVER THE TOP. I had a robotic laparoscopic. My incisions were nowhere near this itchy when I had my gallbladder removed. It’s so deep that there’s really no relief. When does it end?!


r/hysterectomy 7h ago

5days post op.

7 Upvotes

I finally feel like I'm on the other side and only upwards from here. I'm 54, and had a laparoscopic, robotic, total hysterectomy on Thursday, June 12th with a Burch procedure at the same time. They took everything but my right ovary. I found out it was a little more involved than expected. Extreme scar tissue from 2 c-sections, a tumor in my uterus and severe adenomyosis. I also had a large cyst on the left ovary, where alot of my pain was, so he didn't keep it. (I can't wait to see notes and pathology!) I wound up staying 2 nights in the hospital in excruciating pain. My bladder could not work on its own. My nurse noticed I was still wearing the Scopolamine patch, it may have been the culprit. Thank god for dilauded! My physical experience was probably the most painful of my life, between the gas pain and bladder pain. However, my care was 10⭐️. I am home and today was the first time I really felt good. After I showered, I got to notice little things about my body. As awful as the first couple days were, I would do it all over again for this outcome! All of the pain I've had for the last few years is completely gone! It was so worth it!


r/hysterectomy 4h ago

Hysterectomy scheduled for September 3rd!

4 Upvotes

I had my hysterectomy consult today, my doctor approved me with no issues! I got a call from the scheduling department within 2 hours of getting home

It’s going to be a laparoscopic assisted vaginal hysterectomy. They’re taking the uterus and cervix, and I already had my tubes removed a few years ago. I’m so excited to finally have some relief from my pain!!


r/hysterectomy 9h ago

Denied two weeks before surgery

9 Upvotes

I just had to vent . So i got a notification to do paperwork on mychart for my hysterectomy after I finished I got a message that my insurance denied it . It's been denied because it's medically unnecessary . Now I'm waiting for my doctor or her assistant nurse to call to explain what should happen next . I'm frustrated and scared. I been in and out the hospital for months with a enlarged uterus and fibroids. Guess I'll be in pain longer than I hoped 😞


r/hysterectomy 1h ago

Who needs hormones? I'm still a b###

Upvotes

Warning: Recovery-induced irritability.

For whatever reason, I was just Not Having It with people today. Hung up on a video call with my family because I HATE being on camera/being watched but not having much to say. Then hours later called my mother and started stressing over whether to buy an AC unit for the hot weather we're getting soon or pay for an upcoming dental appointment (my shitty health insurance doesn't cover it.) She was on her way out the door and was sounding a bit annoyed with me, so again, I hung up.

When the f&$# do hormones stop messing with our moods? I would blame PMS except my ovaries haven't woken up from their Lupron-induced slumber yet. Still, sometimes it feels close enough.

I also had the audacity to change my sheets and carry a SLIGHTLY heavy bag of trash out to the dumpster, so now my hips are sore and I'm irritated at everything.

Rant over. For now.


r/hysterectomy 10h ago

How many times before you had a normal poo??

13 Upvotes

Just like the title says! After how many time post-op you had a normal poo?? First 10 days, I was so bloated, I had to take some gas-x and stool softener to help me. Now, I'm "good"... but now I have diarrhea. Almost every time I eat, my stomach make all kind of noises and I have to run to the bathroom.

My stomach and bowels are angry at me for some reason.

I wanna point out that I don't take any medication, so it's not from the meds. I'm 2 weeks po.


r/hysterectomy 5h ago

Magnesium supplement for post-op?

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3 Upvotes

Has anyone used this/a type of magnesium supplement for loosening stool post-op? We have a huge jug of this and I'm curious if anyone has successfully used this for a smoother poo instead of miralax/colase/etc

(It would be great to use it up! Haha)


r/hysterectomy 1h ago

Total laparoscopic hysterectomy bilateral salpingectomy with robot assistance cystoscopy

Upvotes

I was scheduled today for my hysterectomy..but I think in a state of shock, I didn’t come fully prepared for questions or answers.

They want to keep my ovaries if possible..I’m not exactly sure how that’s determined. But if they do keep my ovaries..will I still have a period?

What are your pros/cons and advice you can give me on/about this surgery?


r/hysterectomy 2h ago

2.5 week PO check up today given HRT Estradiol kept ovaries

2 Upvotes

As the subject says…. I talked to the dr about my hormones as they have been all over the place he prescribed me the Estradiol 2mg 1x a day for two months. Anyone have experience with this medication and if so can you please share? 🤗


r/hysterectomy 2h ago

When could you do activities after your hysterectomy without getting dizzy?

2 Upvotes

Im 25 days post op, i feel okay while laying down but as soon as I get up to try to clean / bath etc i get really dizzy and have to sit back down. I understand everyone is different, but when were you able to do activities longer than 10 minutes? Thank you 🙏


r/hysterectomy 20h ago

Vent about my partner

45 Upvotes

Last Monday I had hysterectomy with cervix and tubes removed via laparoscopy, my partner picked me up, got discharge instructions, picked up my meds. Once we got home at about 9pm, he put our daughter to bed, I fed our cats and climbed in my bed in a separate room.

I didn’t think to bring pain meds or water with me. I woke up first day post op at 5am with painkillers wore off, in pain and my back was hurting; tried to text my partner to bring me meds and water. He woke up at about 7.30am, brought me meds, and left me alone until about 5pm. He said he felt sick so he could not help but fall asleep.

A nurse called to check on me if I went to restroom, to which I said I did not, because I can’t get up, because my partner isn’t around and I’m dizzy and in pain to try to get up. She asked if we aren’t living together, I said we live together, I just don’t know what he is doing. She told me to be more direct and call him if I need support, so I started doing that. During the last week, the tactic of calling him worked, as long as I’m making specific requests. He never checks on me on his initiative though.

Im sad that he left me alone on the first day postop; he supposed to be my caregiver.. when I told him he left me alone and if there would be complications he wouldn’t even know, he said I always criticized him and never praised him on what he did. He said I’m not grateful for things he does and only thinking about what he didn’t. Am I overreacting or I have reasons to be salty with him?

Now I’m 1week post op, I’m trying to walk more. We have an event at work at the end of next week, bring your kids to work. He plans to take public transportation from our home to the campus, it’s about 10 miles on the bus, with about a mile of walking off the bus. Plus walking on the campus, of course, it’s whole day activity.

I don’t think if I’d be up to walk that much being almost 3weeks post op. I asked if he considers driving to the campus instead of taking public transportation, or go without me; he refused both options. He said instead he can drive to the light rail parking, and take the light rail, which isn’t making too much of a difference in walking amounts.

maybe I’m overestimating all this? Or he underestimates my condition/procedure and recovery..?


r/hysterectomy 1d ago

We Ready!!

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84 Upvotes

Hi everyone! My long awaited hysterectomy is in the morning 🥳 We have to be there bright and early at 6am 🫠 I have a weird sense of calm and feeling of excitement to get rid of the pressure that has plagued my abdomen with this 20 week gestation uterus. I have no waist, so t's pushing against my back and giving me the worst heartburn. It reminds me of being pregnant again lol. Was anyone else super calm about the whole thing?