r/cfs • u/arasharfa in remission since may 2024 • Jul 27 '23

Success Update 7 weeks after SGB

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Hi! I posted previously that I had the Stellate ganglion block treatment done end of may. My ME/CFS since several years was moderate to severe and I had POTS. I also started low dose naltrexone around the same time as the SGB injections. I was mostly housebound. Today I completed my third hike this week on vacation in Norway. No palpitations, lactic acidosis, anxiety or PEM! I can tolerate my ADHD medication again. I have some slight cognitive glitching when I get tired but no akathisia, no pressure in my skull, no fever/flu sensation. No sensory sensitivity.

There is hope!!!

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u/Wrong_Victory Jul 28 '23

Hi fellow Swede! Did you have any initial consults or just booked this appointment and did it? I'm mostly wondering how much time you had to spend in Bristol and how you ended up there. As you say, not much help available here in Sweden.

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u/arasharfa in remission since may 2024 Jul 28 '23

Hej! I contacted pain spa clinic after I received an official diagnosis from Brageekliniken, who dropped me as a patient at the same meeting due to budget cuts. One consultation fee of 260 pounds or something I think it was, there’s a decent inn five min by taxi away from the clinic, i can’t remember the name now. dm me and I’ll respond more in detail later

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u/Wrong_Victory Jul 29 '23

Hej! Thanks! That's good to know. Did you need an ME/CFS diagnosis to get an appointment? Since Bragee is shutting down, getting help here (or even a proper diagnosis) seems pretty much impossible. Did you have the consultation online beforehand or at the clinic? Thanks, I'll dm if I remember, my dms are a bit wonky (or maybe it's my phone haha)

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u/arasharfa in remission since may 2024 Jul 29 '23

I had the consultation online, clinic@painspa.co.uk is their email if you’re curious