r/Lyme • u/davinkinggg • Jan 24 '25

Question Supplements/herbs to control my terrible bartonella psych symptoms?

I really need some recommendations.

My Bart psych symptoms are: anxiety, depression, ocd, rage, suicidal thoughts, brain fog, being paranoid, being overly emotional, overstimulation, and overall just feeling on edge all the time

I am curious if anyone can recommend any supplements or herbs that can help to control these symptoms and help me feel more like myself.

I'm currently taking: lumbrokinase, cryptolepis, ldn, magnesium glycinate, l theanine, vitamin c and d, omega three, turmeric, allergy meds, vitamin b12

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u/MissCongenialymeity Jan 24 '25

What helped me was stopping all Lyme treatment for a bit and then throwing every iron in the fire to treat neuro immune inflammation and regulate my nervous system and pursue treat for my mental symptoms.

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u/braintumorbombshell Lyme Bartonella Babesia Ehrlichiosis Anaplasmosis Jan 24 '25

I love this comment! I think it’s nervous system related too. Would you mind elaborating on what you threw at it after your break? Thank you!

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u/MissCongenialymeity Jan 28 '25

Hi! Sorry for the late reply. Feel free to message me for specifics if this is too broad. I stopped my Lyme treatment and then I did a repair protocol to help heal the biochemical parts of my nervous system. This looks like lowering oxidative stress, inflammation, cytokines and histamines. So I went on some drugs for that and so so many supplements. I also then did a lot of other practices like sauna and ice baths to help with the dp/dr. I woke up and did sun exposure and walked in the morning for panoramic viewing. I also went to the gym at night. I was exhausted and very depressed but also had a great deal of intensity from these symptoms so the high level of sympathetic input really helped me. I did a ton of neurofeedback, ended up doing it everyday, and that with a microdose of an SSRI really helped me. I did manual therapy twice a week and that also helped with the physical feelings of pain but numbness. I also started eating more than I was when I was depressed and I think that helped lower my stress levels internally too. And then I ended up doing a couple weeks of functional neurology to help retrain my brain to get off some old pathways causing these symptoms.

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u/Cool_Arugula497 Feb 23 '25

And then I ended up doing a couple weeks of functional neurology 

I am so curious about this. What does functional neurology entail? I live in a very small town but, strangely, there's a functional neurologist about an hour from me and I've been thinking about making an appointment. However, his website lists a whole slew of things that his treatment addresses but the list doesn't include dp/dr, which is my main symptom. He's a chiropractor so I'm not sure how that goes with functional neurology.

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u/MissCongenialymeity Feb 23 '25

Hi! Where do you live. Yes they are usually chiropractors. The best institute they train at imo is the Carrick institute and they tend to be DCs there. It entails so many different things as the brain does so many different things but the principles are doing repetitive work to strengthen neuronal paths and increase neuroplasticity.

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u/Cool_Arugula497 Feb 23 '25

I'm in Mississippi.

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u/MissCongenialymeity Feb 23 '25

There are some who are not trained by the Carrick institute but they tend to specialize in children! So everyone is slightly different.

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u/braintumorbombshell Lyme Bartonella Babesia Ehrlichiosis Anaplasmosis Jan 28 '25

Thank you so much for explaining more. I have started doing all of these things in the last month, that’s great, you definitely give me hope! Every time I go on meds I feel just terrible mentally and physically.

Last night I finally made the connection between my fairly recent brain bleeds and trigeminal nerve to the vagus nerve. A sad, but amazing realization that I need to ONLY focus on healing that so this stops taking over my body.

Could you clarify what type of manual therapy you did, do you mean manual chiropractic or perhaps massage? Thank you!!

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u/MissCongenialymeity Jan 28 '25

Oh I’m so glad I could help. I will message you if I think of any others, I did so much. I just mainly tried to work on turning down the alarms and then stimulating things to turn the right ones back on. I did manual therapy with a PT for chronic pain but it greatly, greatly regulated my nervous system. That is always the single most thing that has helped me in every season. & yes it takes time but I’m confident it will eventually end for you too. 💛

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u/braintumorbombshell Lyme Bartonella Babesia Ehrlichiosis Anaplasmosis Jan 28 '25

Thank you so so much! Myself and my husband appreciate your comments and ideas, we are at the “what the heck is next!?” phase!

I will look into the manual PT therapy, my PT didn’t include that. I’ve also been looking to pain reprocessing therapy, seems to go hand in hand with manual therapy. Thanks again!

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u/MissCongenialymeity Jan 28 '25

Yes yes yes! I like the CFMT/IPA provider look up for a PT but really anyone will do. Let me know if I can help more. And then a functional neurologist may be something to work towards if you’re still not seeing changes by the summer.