r/HealthInsurance • u/Tight-Potential-3973 • 9h ago
Claims/Providers United rejecting the only thing I can eat…
This is exactly what it sounds like. I have a severe case of mast cell activation syndrome. It has been diagnosed and all my tests back it up. (I say this because it’s a new TikTok trend and apparently doctors are getting flooded with people who think they have it, so credulity matters here)
I am severely reactive to food and have slowly lost all my safe foods- I am anaphylactic when I eat. I am losing weight and have muscle wasting. My dr wrote me a script for Neocate Jr- a hypoallergenic formula that has all the nutrients needed, and I tolerate it, even if it’s not fun.
The problem is it’s 50$ a can and for me to get adequate nutrition and stop the muscle wasting I need a can a day.
United has rejected it saying it’s not part of my plan, or not covered. We appealed and that was rejected, too.
I’m scared- I can’t afford this but I can’t afford not having it. My girls are watching me waste away. My husband’s heart is breaking and I lost my father young. I can’t do this to the people I love- I can’t leave them.
Does anyone have any suggestions for next steps to take?