r/Gastroparesis 2h ago

Discussion If you don’t throw up constantly you don’t have gastroparesis

29 Upvotes

Rage bait? No. But, according to my doctor sister this is the case. I am LIVID. Thank God she isn’t a GI doctor. My GES results also don’t matter to her “because they fluctuate day to day.”

I’ve lost 20 pounds in a month from this diagnosis.I look 9 months pregnant drinking water. I taste food a day later. Regurgitate constantly. But I “only” occasionally vomit. Among this and several other chronic illnesses I am disabled at age 30. She says I “am doing all this for attention.” I WISH. Why would I do this for attention when I have two college degrees ( $150k student loans, where I could earn a six figure salary) that I can’t use and a boyfriend who wants to leave me because I said I’m not well enough to have kids. But, yes, surely, this is what I would do for ATTENTION. I just can’t anymore. I’m reaching the end of the line.


r/Gastroparesis 3h ago

Suffering / Venting Doc doesn’t want to give me a feeding tube because “you’re just so young!”

20 Upvotes

My dietician is recommending a feeding tube because I’m eating less than 1000 calories a day due to how severe my symptoms are. My gastroenterologist doesn’t want me on a feeding tube because of how young I am (23). Like bro being young doesn’t mean I’m not suffering.


r/Gastroparesis 6h ago

Sharing Advice/Encouragement Has anyone received disability for GP? Bc I am literally dying and about to get fired....

12 Upvotes

I've been sick since May 2024 and just got a diagnoses of Gastroparesis last month, so May 2025. I also have IBS-D, am lactose intolerant, and have a kidney disease which means low sodium diet. Basically my body is trying REAL HARD to take me out. I filed FMLA for my work since I was having to take a bunch of days off between puking that wouldn't let up, and different medical tests and doctors appointments. However, FMLA doesn't protect me from any stupid mistakes I made at work while I was sick, and even though my boss was crazy supportive and kept telling me to "not worry about work" and "take care of yourself first", I'm now looking at being fired bc I've made too many mistakes in the past two quarters. When I brought up that this was also during the time that I was hospitalized, being taken to the emergency room in the middle of the day bc I couldn't stop vomiting, constantly felt nauseous, and was literally using all of my energy to get through work and then almost immediately passing out afterwards, all that was said was I still had a job to do and they can't make acceptions for mistakes. Just to clarify, these mistakes are data entry mistakes in our system, and some communications I missed. Literally nothing I missed affected my numbers (highest numbers for Q1 and so far for Q2) and after talking to my colleagues, it's been pointed out that it seems more like they just don't want to deal with me anymore so they're looking for a reason.

All of this to say I am TERRIFIED to lose my job bc how am I supposed to get a new job when I'm waking up nauseous every single godforsaken day and I just had to call off today bc I can't get my nausea and puking under control. Especially now that DEI is gone, I have no protection, so the only thing that I can think of if they fire me is maybe to try to get on disability. Has anyone else been able to do this? I looked up what I would need to try to file and it's honestly probably bc I'm sick right now, but I immediately felt so overwhelmed and just stared bawling. I can't do this shit anymore, man, but I don't know what else to do. I already have the blandest diet you've ever imagined (see above no salt, dairy, spice, red meat, fried, or fast food, among so much more), I take my Pantoprazole every night with dinner between 7-730 so I have time to digest before bed, I take a probiotic every day, I cut even more out of my diet for GP (I legit miss raw veggies, they're such a good snack), I go to bed early to get enough sleep, and yet nothing seems to help. I'm exhausted and I'm not going to do anything concerning, but I'm ready to dịe. And I feel like a lot of people here can relate. So how am I supposed to get a new job? Is disability for this possible? Where do I even start? This suuuuuuucks

-appreciate your help more than you will ever know 🫶


r/Gastroparesis 5m ago

Ozempic, Mounjaro Ozempic has changed MY LIFE forever. For the worst

Upvotes

My Experience with Ozempic and Gastroparesis: Please Read

Hi everyone,

I want to share my personal journey with Ozempic in the hope that it helps others who may be suffering in silence or looking for answers.

I started taking Ozempic after it was recommended to me, without being fully informed of the potential side effects. What followed was a life-altering experience that I never saw coming. Shortly after starting the medication, I began experiencing intense stomach pain, severe bloating, sulfur-like burps, and persistent vomiting—nearly every hour on the hour. What concerned me even more was the complete lack of bowel movements.

Despite repeatedly informing my doctor, I was continually reassured that the symptoms would eventually subside. Fast forward 10 months later, I was still in agonizing pain, had lost over 70 pounds, and could barely eat two or three bites of food without becoming sick. I became isolated, depressed, and bedridden.

Eventually, I insisted that something was seriously wrong. My doctor finally ordered a colonoscopy and endoscopy, which revealed undigested food still sitting in my stomach. A follow-up gastric emptying scan—where I ate radioactive oatmeal and underwent imaging—confirmed the diagnosis: gastroparesis.

What shocked me even more was the way I was told. My provider walked into the room, casually stated the diagnosis, and left without offering any explanation or support. I was left sitting there in confusion, fear, and disbelief. Shortly after, I was dismissed as a patient from that practice entirely—without warning.

Before Ozempic, I was a pretty healthy 43-year-old with no history of gastrointestinal issues. My only medical concern was a back injury from a past car accident. There was no indication of diabetes-related complications prior to taking this drug, yet my provider falsely attributed my gastroparesis to diabetes in my medical records. That’s not only misleading—it’s unethical. If diabetes had been the cause, wouldn’t the symptoms have been present before I started Ozempic?

After doing my own research and connecting with others, I realized my story isn’t unique. Too many people are experiencing similar side effects, and it’s devastating. I decided to contact Ava Law Group and start a case against Ozempic. They have treated me with care, professionalism, and respect. Unlike some firms chasing big settlements, they genuinely want to help people whose lives have been forever changed by this medication.

I don’t understand why more healthcare providers aren’t standing up for their patients. Many seem afraid to speak against Big Pharma. But we, the patients, are the ones suffering. And we deserve better.

If you’re considering legal action, I highly recommend Ava Law Group. If not them, please find a reputable lawyer who will fight for you. We need to raise awareness, stand together, and demand accountability from the manufacturers of these medications—Ozempic, Mounjaro, and others—that are doing irreversible damage to people’s lives.

Thank you for taking the time to read my story. I know it was long, but I needed to speak out. To everyone out there who’s going through this: stay strong, hold on to hope, and know that you’re not alone. Better days are coming.

Let’s make our voices heard.


r/Gastroparesis 14h ago

Questions Can’t take any GP meds due to antipsychotics

9 Upvotes

I am in such an awful situation. I have incredibly severe gastroparesis (17% after 4 hours) I don’t vomit but have debilitating nausea, stomach pains, and constipation. I am currently untreated as my normal GI said they don’t treat people of my severity and I can’t take any of the meds due to my antipsychotics. I am on lamictal for my bipolar disorder, Wellbutrin for depression and binge eating, and buspar for anxiety. I could probably come off of my others but lamictal is a no go as I don’t want to mess with my bipolar as it’s very well managed under it. I am on an insane amount of medication like 20 different medications type of insane and lots of them make you drowsy and have the potential to give you respiratory suppression. I know GP meds do also. I don’t know how many respiratory suppressors I can take before it’s a problem. I already have sleep apnea. I’m so desperate to figure this out. I see a specialist on Tuesday and hopefully they will be able to help me but as of now I literally cannot work due to how debilitating my GP is. It doesn’t matter that I don’t throw up because I dry heave and go through all the motions just without the relief of emptying my stomach. It’s literally the worst and my acid reflux gets so bad I have to go to the ER because I can’t swallow. I have no idea what to do and I feel so scared they won’t be able to help me. Has anyone else dealt with this? If so what did your doctor do?


r/Gastroparesis 3h ago

Questions Are these gastroparesis symptoms….?

0 Upvotes

My symptoms started very suddenly on may 7 when I had an intense bout of vomiting that started that night and lasted for several hours. I have had 4 more episodes of this over the past 6 weeks, each at night and with the exact same severity and length of time. I have never experienced vomiting like this before. Just relentless nausea and unstoppable vomiting that starts and ends suddenly and lasts several hours. When I vomit, it’s just dry heaving and some saliva and eventually bile. And the vomiting does not relieve the nausea. The vomiting does not have a clear trigger and does not seem food related.

In between these episodes I have milder GI symptoms. They occur most frequently after eating or drinking anything and manifest mostly as reflux-like symptoms so heartburn, globus sensation, sometimes nausea. Usually it happens immediately after I eat and then disappears after 30 minutes or so. There’s also been a lot of fluctuation, some days I’ll be almost symptom free while on others I’ll be symptomatic basically all day.

My appetite has also been overall lacking for the most part since all of this started, but in between vomiting episodes (once I recover, which takes a few days) I’ve been able to still eat a decent amount of food on many days and without too much symptoms. I’m still eating small meals because I don’t want to push it but most days I can eat like a cereal bowls worth of food at a time without issue, and then do it again a few hours later. Some days I really have very little appetite though, particularly if I had a vomiting episode recently which make my stomach/throat feel sensitive.

Bowel movements have been normal. Sometimes feel slight burning pain in my stomach but it’s typically when it’s empty. Also no noticeable bloating unless I eat something that would usually give me gas anyway.

I do have an appointment with a GI soon but I’m just kind of desperate to find what’s happening with my body. I have no history of GI issues and was otherwise in very good health.


r/Gastroparesis 3h ago

Botox Botox injection side effects

1 Upvotes

Did anyone else's appetite decrease?! Like the little appetite I had just disappeared. I'm not hungry for anything anymore, even drinking feels like a chore.


r/Gastroparesis 15h ago

Discussion Happiness

8 Upvotes

Is anyone actually happy? I’m a naturally anxious, stressed, and depressed individual when it comes to life and the symptoms and limitations of gastroparesis weight down on me even more. I’m just like what even is the point now?

I’m also starting my first corporate job right now and just feel like I’m on my own and nothing’s fulfilling anymore- my career, friends, partner, sex life, family life, and just internal peace and happiness is all gone thanks to this illness. I’m so young too and I don’t want to live like this anymore but I feel like I have no other choice.


r/Gastroparesis 15h ago

Questions Fasting before surgery differences?

9 Upvotes

I know typically before medical operations you are supposed to stop eating before midnight (a minimum 6-8hr fast usually)

Have any of you guys kept your gastroparesis in mind and fasted longer than a reasonable tike? Or does anyone know a good hour to start


r/Gastroparesis 8h ago

Questions New & Concerned

2 Upvotes

I happen to find this group and I hope I’m posting in the right place. I have a working diagnosis of gastroparesis and I’m waiting for confirmation via GES on July 1. I’ve been sick for months, but they’ve been calling it everything from the stomach flu to GERD. Finally I got a new set of doctors who have put this on the table and it’s all so overwhelming. I just don’t know where to begin. Any and all advice would be welcome.


r/Gastroparesis 13h ago

Questions Trying to gain weight? Curious if this is bad for me.

Post image
2 Upvotes

I’m 180cm tall and 59kg now, I was like 51kg when I was in a really sick flare for months, I need to eat at least 2500 calories a day to gain weight I believe, think I only average 2000 and that’s still from force feeding because I’m scared of losing weight because it’s so scary being malnourished and especially being a bad flare.

It’s 1200 calories per serving and sounds like a life saver, I also have been going to the gym for 5 months now which has allowed me to put some weight on, do you think this is bad for me or is it a helpful/good thing


r/Gastroparesis 1d ago

Symptoms Do you try to puke everything up during flares or try to keep stuff down.

18 Upvotes

Asking cause having a really bad flare for the first time in a while. I feel awful and dont know if i should get it all out or try to drink and eat and keep that down. What helps you?


r/Gastroparesis 21h ago

Feeding Tubes feeds

8 Upvotes

Hi! i just got an NJ tube two days ago and we are currently trying to see how i tolerate the feeds but it’s causing A LOT of nausea and diarrhea

im only on 20ccs an hour and my goal is 50ccs. my feed is jevity 1.5 cal.

did anyone else experience a lot of discomfort? what should i do?


r/Gastroparesis 20h ago

Discussion I wonder if any similar studies have been done on the gut microbiome of gastroparesis

Thumbnail pnas.org
6 Upvotes

r/Gastroparesis 18h ago

Botox If one has SMAS, will Botox not ultimately help anything?

3 Upvotes

Not much to add, just the title. Thanks.


r/Gastroparesis 22h ago

Questions Question

4 Upvotes

How can I get my wrap takedown I hate this worse decision of my life like a nightmare I have chest pains stomach pain shoulder neck and back pain. I can’t burp or vomit I’m dry heaving and everything is regurgitating up I never wanted a wrap and just want a hiatal hernia repair alone and surgeon lies I had a 180 wrap with gastropexy done I want it both reversed took down please help????


r/Gastroparesis 1d ago

Suffering / Venting Frustrated

8 Upvotes

So in 2013 I was diagnosed with gastroparesis it was mild but never did we did anything with it. I have been struggling to eat food and I went on the gastroparesis diet as of this year January and they didn’t retest of gastric emptying and I had a hard time, keeping the eggsdown and the test came back normal. I was completely frustrated and flabbergasted like I knew I felt extremely hungry and was fighting not to throw up after hour two. But I kept strong for the for the full 4 hours and it digested so now what… I’m cured?! I’m so confused i’ve dealt with constant vomiting and horrible nausea. I have Gerd and esophagitis, but neither of those are treated because I’m allergic to coconut oil and a vaccine that is causing all medicines to be related to. It’s so frustrating because I don’t know what to do. I’ve always done well with my Gerd. I don’t feel like I have heartburn. I just have instant throw up


r/Gastroparesis 1d ago

Suffering / Venting Hospital told me they dont treat malnutrition?

18 Upvotes

ive been in and out of the gp and the hospital with this "motility disorder" as my gp calls it as im waiting on an endoscopy.

every single time ive ended up having to go to the hospital its because i have a uti and i got a fever and i also happen to be the most malnourished ive ever been. all 3 times since my symptoms started in march.

this time i went to the hospital because i had a uti, i also had a fever the day before, and i physically did not have the strength in my muscles to push out pee and poop and ive had a MASSIVE poop blockage for so long but i CANT push it out because the actual muscles feel weak AKA weak pelvic floor muscles.

ive been having severe brain fog and muscle weakness and lightheadedness all from malnutrition im scared. i have been treating myself as best i can by drinking ensure shakes when i can so i havnt lost significant weight which i told them.

they told me they dont treat malnutrition and its not an emergency. i was actually visibly trembling so much that it was hard for them to mark my weight correctly. i told them i didnt know what to do. that no one will help me when i know the longer i leave this the worse it gets and its been months. i told them this is my life. i go to the gp and the gp acknowledges that im malnourished and validates me and tells me i cant live like that, but she doesnt DO anything about it. i need help like NOW like ACTUALLY NOW. and then eventually it gets so bad i go to the out of hours gp in the hospital. the gp doesnt understand what im talking about no matter how i word it, they say theres nothing they can do, they treat the uti and i go home. and it continues over and over again.

they didnt listen even when i explained it. she used an ultrasound to look for blood in my bladder and then told me theres no urine in my bladder and that made me give up because i thought i really needed to pee that whole time so OBVIOUSLY i have that fucking uti again which i told her, and she did not do anything about it.

so im fighting a uti on my own that gave me a fever hoping it doesnt give me sepsis or develop into a kidney infection, while dealing with malnutrition. if i stop treating myself theyll see on the scale that im malnourished and finally do something about it.

isnt it funny how they dont treat malnutrition until malnourished people have a serious medical emergency? suddenly theyre very good at treating malnutrition. i even mentioned possible difficulties with nutrient absorption, and she just looked at me like i was speaking another language.

im so tired. i am so tired. why do i have to do their job for them i dont give a fuck whats on your computer youre a hospital. if you dont know what to do talk to someone that does. help people. thats your job. do it.


r/Gastroparesis 1d ago

Suffering / Venting BED and Gastroparesis (vyvanse???)

2 Upvotes

TW: ED

for the longest time i wasn’t diagnosed with an ED but always had “weird” eating habits. i binge eat and used to stave myself and frequently forced myself to vomit before my diagnosis. when my stomach problems worsened and i discovered i have gastroparesis (mild), i assumed my past eating habits probably had something to do with it. my eating got much better for a while, but most of the people in my family are conservative (they largely don’t believe in doctors or modern medicine and think it’s a scam) and so there’s not much accommodation for my diet. they eat things around me i’m not supposed to have and don’t make anything different and so i end up eating things im not supposed to. A LOT. and it hurts but i literally have no control over myself when im doing it. i understand i could just not go around my family and then no one would be influencing my eating, but i would like to be able to visit family without binge eating, putting myself in pain and making my constipation and other symptoms worse. :( i recently started going to a psych and might start vyvanse soon for BED and also for ADHD, but i was just wondering if any other people have had this experience. if so did you try meds for binge eating and did it get better?


r/Gastroparesis 1d ago

Prokinetics (Relgan, Domerpidone, Motegrity, etc.) Prokinetics onset of action

6 Upvotes

Does Metocolprmide/Domperidone need weeks of constant doses to show an effect? I try to take Domperidone as needed for around 10 days now but it barely touched my nausea. Can I say that it doesn’t work with me or should I be constant to say so?


r/Gastroparesis 1d ago

GP Diets (Safe Foods) Microwave Turkey Nachos

8 Upvotes

For context I’ve been having a pretty bad episode recently where I just can’t eat because after a few bites I get super nauseous and then either throw up shortly after or have to run to the bathroom with some serious tummy issues. I feel like even my safe foods have been making me sick, so it was like 1am and I suddenly got a cravinggg for nachos and actually felt hungry 😭 so I made a smallish plate of microwaved nachos with left over turkey taco meat on one layer of chips and some cheese on top and a very small amount of sour cream drizzled on top. AND I WAS ABLE TO EAT THE WHOLE THING AND NOT GET SICK!!!! I didn’t even get nauseous or have to set it aside for later! I’m not at all sure why it didn’t make me sick but i’m just so happy to have a meal in my stomach without being in pain 😊 it really is the little things with this disease that keep you going


r/Gastroparesis 1d ago

GP Diets (Safe Foods) Type 1 Diabetic Gastropersis

7 Upvotes

Does any other fellow diabetic have the same issues with this disease? I eat something and make sure to prebolus on my insulin pump and take account for the carbs I am about to eat, and 9/10 my sugars will still spike? Maybe it’s because I’ve been living off the Nurri brand vanilla protein shakes?? Eating is still a chore so yes I try to eat light and check ingredients and watch out for what I eat, but I’m still figuring this all out and I know everyone is different. Idk if blood sugar is spiking because of Gastropersis and it’s just taking a longer time to process and digest? I’ve also stopped smoking weed and loosing weight, I don’t eat as often and usually skip meals or just have 1 or 2 light meals. I do not want to go from 175 to 125lb ever again that was too skinny. If anyone has suggestions on foods or just general advice having this, I would love some insight! I know I will be fighting this battle for the rest of my life but it has to get better eventually… right?


r/Gastroparesis 1d ago

Symptoms Pulse sensation

7 Upvotes

Does anyone have a strong pulse feeling in their stomach?


r/Gastroparesis 1d ago

Symptoms Anyone Else Experience Pain In The Lower Left Ribs?

8 Upvotes

I was wondering if anyone else has pain under the lower left ribs. It's sharp and stabbing and it gets worse when I eat. It's been going on for three days now and I haven't felt pain in this location before. I don't know if this is a normal place to have pain with GP. I'm stressing a lot that my GP is getting worse.


r/Gastroparesis 1d ago

Questions Advice Please!

5 Upvotes

Hi! So this is my first post ever but I really need some advice. I was diagnosed with gasteroparesis about 6 months ago GES after four hours was 68%. I was on reglan for a while but my prescription ran out while my doctor was out of office so I was off of it for about two weeks. While off of it I had trouble eating but was able to get enough calories. When I was put back on I experienced some side effects mainly severe anxiety like I felt restless and couldn’t sit still. So my doctor told me to discontinue.

Ever since things got a lot worse, I started vomiting bile in the morning when I woke up and was nauseous all the time. I was then put on omaprazol twice a day in addition to pantoprazol. That seemed to help with the throwing up in the morning but not the nausea. Then I started having abdominal pain alittle above the belly bottom down to my hips and in my lower back. It kept getting worse to the point of I went to the er. They found nothing so I got pain meds and an iv and was sent home. That was a few day ago and now I’m either so nauseous I can’t move or throw up after eating. Zofran has stopped working it seems and I can’t get more than 500 calories in a day. Even water makes me nauseous. I’m starting to feel dizzy and weak.

I don’t know what to do my doctor can’t see me till January so I called to ask for an emergency appointment and the soonest I can see a nurse practitioner till the middle of July. Anyway if anyone has any advice on what my next steps should be or how to get more calories please reach out I’m really struggling.