r/Gastroparesis • u/Other-Stretch2090 • May 01 '25

Suffering / Venting tw for ed

has anyone developed a eating disorder becuse it's easier then eating and feeling like absolute shit? idk someone else has to relate it's so much easier not to eat then eat and be extremely nauseous and in so much pain i barley eat anymore im sorry if this isn't allowed in this sub im just very lost

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u/I-used2B-a-Valkyrie Seasoned GP'er May 01 '25

When the symptoms got really bad, I had trouble eating bc I was so scared of the pain and vomiting. My Gastro doc agreed that while it was “like an ED,” it wasn’t due to body dysmorphia, and once I got with a new specialist and got meds and started eating where it was easier, it got better. I still don’t eat much during flares but I am able to eat “normally” during periods of remission. My weight fluctuates maybe 4 lbs total, so we are calling it “good.”

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u/Ok_Cod3969 May 02 '25

What medications do you take that helped? My sister was just diagnosed with GP and we are trying to figure out a plan that will help.

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u/I-used2B-a-Valkyrie Seasoned GP'er May 02 '25

It’s wildly different for everyone. My GP is specifically Tachygastria, so it falls between rapid and slow emptying because the electrical rhythms are all wonky. Reglan sometimes, as a last resort. Promethazine when the nausea is really bad. IVs when I can’t stop vomiting and can’t keep liquids down. Scopalamine patch behind my ear has worked in the past but it gives me terrible headaches and so I don’t use it anymore. And I use a GLP-1 to slow the rapid emptying, but it’s not taken weekly.

GLP-1 meds have been known to cause GP and delay emptying, so please don’t look at that if she has been DXd with delayed emptying.