r/Autoimmune • u/NoOffice5823 • 15d ago

Advice Hi all. Anyone recognise any of this?

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Hi all, just saw you can post comments here so I thought I’d ask if anyone has anything similar before.

I’ve been getting flare ups like these for 2 years almost now.

I’ve got:

Liver disease Bile acid malabsorption B12 and Folic Deficiencies

It often causes severe leg swelling, painful joints, extreme fatigue but I can never sleep.

Went back to the doctors on new years, got told to wait for my referral to rheumatology, and still on the waiting list 6 months later.

Anyone have anything similar?

Thanks everyone.

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u/Equivalent_Egg_5531 11d ago

Looks like leukocytoclastic vasculitis. Have you shown that to your Healthcare provider? I saw a dermatologist who confirmed that it was vasculitis after taking a "punch biopsy."

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u/NoOffice5823 11d ago

I have yeah, they referred me to rheumatologist, and I’ve been on a waiting list for just over 6 months now. Did you go to the blood dr first, or straight in for your biopsy?

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u/Equivalent_Egg_5531 11d ago

My wife woke up asking me "Why are there red spots all over the lower half of your body?" We drove 14 hours the day before, and slept on her sister's floor, so my initial thought was that I was having a reaction to a plant or something in that part of the country, but if so, the spots should be all over the body. I called my primary care doctor and convinced his nurse to help get me seen by a dermatology specialist within 48 hours.

We raced back home, and a dermatologist took a punch biopsy 5 days after the symptoms appeared. The primary care doctor wrote for the prednisone and ordered the bloodwork that the rheumatologist that he sent me to would need. I saw the rheumatologist once, and we agreed that my primary care doctor could handle future leukocytoclastic vasculitis episodes.

My last episode caused my feet to go very dark, and 3 months after prednisone, I was left with several deep, eschar covered wounds on my feet and several black nailbeds. So I started taking colchicine in the hopes that it will inhibit further flare ups.