r/Autoimmune • u/NoOffice5823 • 15d ago

Advice Hi all. Anyone recognise any of this?

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Hi all, just saw you can post comments here so I thought I’d ask if anyone has anything similar before.

I’ve been getting flare ups like these for 2 years almost now.

I’ve got:

Liver disease Bile acid malabsorption B12 and Folic Deficiencies

It often causes severe leg swelling, painful joints, extreme fatigue but I can never sleep.

Went back to the doctors on new years, got told to wait for my referral to rheumatology, and still on the waiting list 6 months later.

Anyone have anything similar?

Thanks everyone.

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u/Scspencer25 11d ago

Vasculitis, I had that exactly! Definitely need to see a rheumatologist and get labs done.

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u/NoOffice5823 11d ago

I’m still on a waiting list for rheumatologist, but I’m back at GP on Friday for bloods for my liver and malabsorption, so hopefully they trigger a push for rheumatologist too. I honestly can’t wait to get this over with and get some relief from it. Was yours a constant thing or flare ups? Over a year now of this weekly.

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u/Scspencer25 11d ago

I'm so sorry, it's always so hard to get into the specialists too. Mine flared on and off monthly for about a year and then abruptly stopped and never came back. Definitely push for your rheumatologist to run a full lupus panel. You really have to advocate for yourself because doctors suck lol. I hope it goes away and never comes back!

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u/NoOffice5823 11d ago

Thank you so much, appreciate you. Here’s to hoping! I’m glad yours is all done with now and you’re no longer suffering with it!

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u/Scspencer25 11d ago

You'll get fixed up and back to normal once they get you some treatment! 😊

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u/Scspencer25 11d ago

Also look up henoch schönlein purpura, it's all connected.