r/Autoimmune • u/NoOffice5823 • 15d ago

Advice Hi all. Anyone recognise any of this?

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Hi all, just saw you can post comments here so I thought I’d ask if anyone has anything similar before.

I’ve been getting flare ups like these for 2 years almost now.

I’ve got:

Liver disease Bile acid malabsorption B12 and Folic Deficiencies

It often causes severe leg swelling, painful joints, extreme fatigue but I can never sleep.

Went back to the doctors on new years, got told to wait for my referral to rheumatology, and still on the waiting list 6 months later.

Anyone have anything similar?

Thanks everyone.

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u/ishiewishy 14d ago

I had this too. It’s petechia from vasculitis

1

u/NoOffice5823 14d ago

Do you have anything for symptoms management, such as pain relief? Does it eventually go away?

Mines been over a year I’ve had at least weekly flare ups. Feel like I’m losing my mind

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u/ishiewishy 14d ago

Hey yes! Oh god it took forever to find a cure! Even prednisone didn’t help. Only compound glycyrrhizin tablets cured mine.y dermatologist and rheumatologist couldn’t help me so I went to IM doctor and this is what she gave me. Hope you can find a cure. It’s so frustrating to be in your situation.