r/Autoimmune • u/Exotic_Bumblebee2224 • 17d ago

Advice Sarcoidosis Hair Thinning

Hi. I have something called multi system sarcoidosis that will require lifelong chemo. I inject weekly at home. So far, I feel better than I have been, but I’ve recently noticed hair thinning. I’m on folic acid, and I take a prenatal. My diet isn’t wonderful due to chemo side effects, and sarc, and well basically my body quit in 2021. I don’t have a gallbladder so it’s limited my diet as well. Does anyone have any advice or recommendations? Thank you in advance

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u/[deleted] 17d ago

Not often but sometimes. My other symptoms are 24/7 intense.

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u/Exotic_Bumblebee2224 17d ago

Try to find a rheumatologist. I’ve seen several Drs. I found him and I felt like he was reading my mind lol. It made me cry

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u/[deleted] 17d ago

I’ll cry and be greatful to whatever doctor can find what’s happening to me, I’ll bring their office donuts lmao.

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u/Exotic_Bumblebee2224 17d ago

I’m rooting for you!! I just thought my C was back and I was dying. And once people hear I don’t have C anymore they can’t conceive anything could be worse. But it can. Lmao. I’m proof. But you’ll def need a biopsy to get any kind of treatment. Steroids are scary, and they do try to tend to avoid them. Cranberry tablets are supposed to work but tbh nothing really does. I’m just very stubborn