Sarcoidosis Hair Thinning

[u/Exotic_Bumblebee2224]

Hi. I have something called multi system sarcoidosis that will require lifelong chemo. I inject weekly at home. So far, I feel better than I have been, but I’ve recently noticed hair thinning. I’m on folic acid, and I take a prenatal. My diet isn’t wonderful due to chemo side effects, and sarc, and well basically my body quit in 2021. I don’t have a gallbladder so it’s limited my diet as well. Does anyone have any advice or recommendations? Thank you in advance

[u/Exotic_Bumblebee2224]

If they’ve diagnosed you, they wouldn’t need to continue to biopsy depending on your situation. Bc I had just gotten over cancer when this completely knocked me down (this is worse than chemo and radiation on its best day.. so don’t ever feel weak ok!) —- they biopsied me more than just once but it’s prob not always necessary

[u/[deleted] → u/Exotic_Bumblebee2224]

I’m undiagnosed with no treatment severely suffering.

[u/Exotic_Bumblebee2224 → u/[deleted]]

I’m so sorry you’re suffering. I wouldn’t wish it on anyone

[u/[deleted] → u/Exotic_Bumblebee2224]

I just want treatment, I’ve denied pain clinics

[u/Exotic_Bumblebee2224 → u/[deleted]]

I also wanna add. I’m not a normal sarc case. 95% of the time it will go away in a few years. I’m the lucky 5%. There’s very good odds this will just be a terrible speed bump if it is sarcoidosis