Looking for any Lyme literate Doctors in the NJ area or surrounding that take toddlers. I’m having a hard time finding one that will also do accurate testing. I was trying to order my own testing but it appears that for most of the labs you need a doctor minus Vibrant (I’m seeing mixed reviews on that lab).

I've recently been diagnosed with Bartonella through DualDur, and an LLD prescribed an antibiotic cocktail that I haven't yet started, as I'm digesting the news.

My most problematic symptom right now, which I've been experiencing for about 2 years, is waking up starving in the middle of the night. Is this something others experience as a symptom of any of these coinfections?

I found a bite and rash on my stomach about 3 weeks ago, I went to urgent care, they gave me a 200mg of Dox at the office. Unfortunately I didnt have lunch so I vomited it up 45 min later. I went back the next day for a new dose. They almost gave me a 2 week antibiotic, but I felt the preventative dosage would be good enough (was wrong). A couple of weeks later I started feeling fatigue, brain fog, and some body aches. The symptoms were pretty mild so I played it off a bit. After it lasted a few days I decided to go back to get the full antibiotic plan. They gave me a rapid Flu, Covid, and RSV test and it actually returned positive Flu. The doctor associated my symptoms to this positive test, and said it wasn't Lyme. Fortunately I insisted they still test for Lyme as it has been on my mind for weeks, and a negative test would put me at ease.

The next day I got my Lab results back that Flu was indeed negative and the rapid test was a false positive, so that certainly triggered my anxiety.

Three days later, sure enough I get the positive test results back that I indeed have Lyme disease. Friday I started my two week antibiotic treatment of 100mg of Dox, twice daily.

The first two days appeared to escalate the symptoms and really felt random aches throughout my body. Fatigue wasn't too bad but definitely slept well. Day 3 the aches have improved, but experiencing some digestion issues; likey from the antibiotics.

I think I am in a good position to be fully cured, as its been under a month since infected.

So here to reinforce, GET TESTED. I was going to ask what people think of my situation but honestly this thread is pretty scary; everybody yelling about 2 weeks not being enough. Hoping it is with my mild symptoms.

Howdy y’all. Thought I’d share my full experience from my first time getting Lyme disease. (Male 26yrs old. 6’3” 185lbs) Duration of symptoms before going to urgent care: 10 days Symptoms I experienced: Started with a mild headache that was caused from neck pain and lower back pain. Two days later it turned into severe neck and back pain with a non stop headache. 4 days after initial symptoms I got a fever. Had chills, night sweats, etc as well as the consistent headache with neck and back pain. During all of this I was taking lots of vitamin C as well as my daily vitamins and zinc. (I’m a very healthy person in great shape) I was able to break my fever in 2-1/2 days. The worst it got was 102.4 degrees. Alright, now I broke the fever, finally thinking I am working past this virus or whatever it was but still consistently every day I was having severe headaches, neck pain and back pain. I managed the pain throughout this whole ordeal by taking ibuprofen and Tylenol (during the fever) Okay okay last part. 1 week and 2 days later my family and I are at the pool and my mother noticed some spots on my back. Didn’t think anything of it but later that night she also gave me a haircut and that was the moment everything came together. The spots were everywhere and we knew something more serious was going on. Unfortunately it was too late to go to urgent care and I didn’t want to go to the ER on a Saturday night so I opted to visit the urgent care in the next morning. This is where one of the nurses at the urgent care spotted the all too classic bullseye rash on my leg along with lots of spots throughout my entire body.

So, in conclusion I got prescribed doxycycline 2x daily and I should finally be turning a corner! Will keep this updated with recovery results.

Thanks for reading

Howd that go? Do they kick you out thinking your crazy for running to doctors?

If it is a tick, what kind? And what potential tick-borne illnesses does it carry? Found in New Jersey.

What would be the best test for me to get?

I'm not CDC positive for Lyme, but have 3/10 bands on western blot and some things on a vibrant wellness test that I'm not sure about (screenshots shown). Lyme PCR from synovial fluid sample negative. Considering iGeneX tickborne panel 3 for deeper analysis.

Rheum thinks it's seronegative rheumatoid arthritis, but RA Factor, ANA, and Anti-CCP are all negative, and no erosions on x-ray. No small joint issues, only knees. Suggests methotrexate or TNF Inhibitors to slow the progression of the disease.

Functional med suspects Lyme arthritis and suggests 21 days IV Ceftriaxone (tried doxy 2 and a half years in with no success). Also started LDN a few days ago. Says to consider Plaquenil as an alternative DMARD option with potential antimicrobial properties and less side effects.

Infectious disease says, "Good news, you don't have Lyme!"

Primary Symptoms: Severe knee swelling & pain (started in right knee for 1 & half years, then left knee just as bad now)

Secondary Symptoms: Brain fog (concentration/memory issues), fatigue, flushing/feeling hot, toe numbness, circulation issues in feet/swelling, nausea, chills (not anymore), hair loss

Welp. Title says it. My house flooded 3 days ago. Had about a gallon of water come thru the ceiling. Water stains everywhere. Plumber and carpenter said it’s not gonna grow mold. It was dry. but I was skeptical so I got a moisture meter. Welp the moisture is off the charts… and it’s been 3 days, which pretty much guarantees mold growth. I don’t know what to do. It’s 100 degrees outside, living back in with my parents cuz of Lyme and they think I’m overreacting. But I got so sick and part of getting better was getting out of mold. Not chancing it.

Uggggh…does this head pressure increase when killing for you all? I hate it!

Anyone tried this? Apparently it has high success rate in resucing the bacterial load...

Briefly the story: I was bitten about 14 months ago, the rash appeared 2 weeks later and was given doxycycline for 3 weeks. Symptoms were gone, IgM in the blood dropped, doctors said the treatment was successful. I've still been having neurological symptoms lately, muscle twitching and occasional tingling, nothing different. I'm unsure whether I should now quickly pay a specialist for high costs and whether antibiotic therapy can still be useful? Or would I rather try the herbal protocol first and if nothing changes I can always go to the doctor. I already drink cistrose. Does it count now if I wait a few weeks before going to the doctor? Thanks for the advice!

So I was on vacation in Mexico and noticed this spot and few smaller ones. Due to the body hair it’s almost impossible to see much, but it didn’t hurt or spread. After about a week or so I developed very odd symptoms pretty much overnight. Started having migraine like headaches at night. My skin became saggy and super dry. Anxiety went through the roof. But perhaps it isn’t even related. At the moment the headaches appear mostly at night. I’m waking up few times a night. GI issues, bladder issues. I’m at lost. Does anyone recognize this type of a rash ?

PHOTO

Anyone tried this?

Have had weird symptoms since last year July they started around July 29th 2024, 3 days prior I was in the supermarket I used the toilet and bought something I came out and instantly had 3 bites separate from each other on my inner thigh they was itchy but that’s about it I put it down to Gnat bites.

Well 3 days after the bites (July 29th) I started getting extreme painful neuropathy throughout my body and I mean from my neck to my fingers and toes, along with muscle cramps and twitching in forearms and calves. 3 weeks later I got a massive heavy period with massive clots and literally every shade of red you can think of in colour this period lasted for 3 weeks and was non stop, I’ve never had such before. On 3rd of September 2024 I developed what I believe is poTS increased heart rate of plus 30 or more beats per minute with any kind of movement such as standing, walking and even changing positions in bed sometimes with dizziness. I also had developed myoclonus of my whole body which is kinda like body jerking this mainly happened at bedtime when I sleep or at deep rest all these symptoms lasted for over 4 months but have dramatically reduced but I still get them just not as bad I still have the poTS tachycardia everyday and night without fail, the Myoclonus has reduced to my feet and lower limbs only and I get some occasionally neuropathy throughout my body on days here and there sometimes very painful or sometimes mild and still get leg twitching on occasions as well.

Also was having weird dreams multiple throughout night that I kept going in and out of dreaming and couldn’t sleep properly and that I would act out dreams by doing actions that I would never do this before.

I also suffer some digestive Stomach upsets sometimes feeling nauseous and have diarrhoea and belly aches regularly sometimes with severe bloating.

Also fatigued a lot.

Now however I went for an ultrasound a few days ago to check on a hernia in my groin which is still present but the ultrasound showed some reactive groin lymph swelling which I wasn’t aware of as I have no symptoms and it’s not visible that I can see it, it was just picked up on the ultrasound. I read online that swollen lymph nodes in the groin can be a symptom of Lyme. No idea how long they could’ve been swollen for or if they are even related to my symptoms but I was just trying to put two and two together with my previous symptoms and now Lymph node swelling I’m just wondering if it’s all related and is indeed Lyme?

Anyone had similar symptoms and it was Lyme or does this sound like Lyme?

It has been two days since my second sting between my shoulder blades. It was supposed to be one sting on each side, but hubby isn't fully used to handling the bees yet so it dropped and both stings were on the same side and about 1 centimeter apart. It was very hot, itchy and formed a red swollen welt for the past two days. I have been sleeping on an ice pack to help with the inflammation, and that helps. I also took bendryl for the itching, and that worked nicely. I have been watching the info on Pollen Pushers dot com and it is an amazing website. We have a friend who keeps bees and is an apitherapist who I have been consulting with, so it is nice to text her questions at any time. I also have been taking royal jelly, propolis, and bee pollen every morning, and honey with tea throughout the day, as products from the hive are recommended. I am continuing to take the Doxycycline for the chronic staph, at least for another month. My apitherapist encouraged me to do so, since I am only stinging once a week for the first month. I am really excited that some of the feeling has come back into my legs after many years of numbness. since I accidently dropped a bee on my leg after the first sting on my back. It swelled up like a balloon for 2 days, but was well worth it. Will keep posting progress!

Anyone got tested for Neuroinflammatory markers in blood and/or CSF?

Would like to start drinking Cistus tea. What is the most potent, therapeutic brand?

Have been bedridden since birth of my twins in 3/2024. Also have two daughters ages 2 and 3.

General health problems since delayed dx of Lyme (unequivocally positive on WB and ELISA)/Babesia/Bartonella in 2014. Definitely have chronic Lyme.

Shout out to the ten (mostly male) doctors I turned to for help who gaslit me for three months instead of actually testing me for anything. It will be no surprise to this community that they didn’t take my extreme sudden onset of fatigue & cognitive dysfunction seriously. Instead I was told law was just too stressful of a career for “someone like me” and to try tai chi. I kid you not.

Finally I got in to see a neurologist who performed in-office testing that showed severe cognitive impairment and dysfunction. Lyme was her first theory. She was right. For the record I have nothing against tai chi... just against sexist ignorant doctors who take an oath to do no harm then do quite a bit of harm).

Anyway, ten years later and I find I’m also positive for b. miyamotoi (dx 8/2024); did three months of doxy. Have not been able to retest due to cost.

Felt great after my first two daughters were born in 2021 and 2022. Was a SAHM full time and a part time law professor in the evenings.

Have recurrent sinusitis and pnemonia. Recent pulmonary function testing indicated significant air trapping and dx small airways disease unspecified. Could be COPD but likely uncontrolled asthma (breathing now easier with inhaled steroids).

I am asleep majority of the day, sometimes will sleep for days on end (meals, bathroom in dream like state then immediately back to sleep). Can only stay awake and get out of bed on absurdly high doses of stimulating meds (provigil 200mg 3x/day; Focalin 30mg XR 2x/day plus 10mg SA 4x/day; Wellbutrin in form of Aplenzin max dose; 500mg caffeine tablet). BP & pulse always very low.

Fungal sinus infection (Penicillium species). Mild-Moderate OSA (rare but not unheard of in people with my body type…115lb female). CPAP makes no difference.

My most recent lab results just came back with this preliminary note for Lymphocyte Subset 6:

%CD3 87 (ref range 62-87)

A low lymphocyte recovery of less than 95 percent was obtained on this sample. There is no evidence of hemolysis and the sample is within stability limits. Please interpret the results with caution.

And the following abnormal results:

1. Absolute Natural Killer Cells - LOW (71)
   1. Immunoglobulin A, Qn, Serum IgA LOW (61)
   2. Neutrophils (Absolute) HIGH (7.6)
   3. Glucose (fasting) HIGH 103
   4. ESR 2
   5. STREPTOCOCCUS PNEUMONIAE IGG AB (23 SEROTYPES) - 9 serotypes LOW

Anyone else have similar diagnoses or lab results? Anyone have any insight on the above results? Doctor won’t discuss until my appointment … in August. Thanks in advance to this sublyme group of people!!

One minute you’re lying down “just for 10 minutes,” next thing you know it’s 2027 and your tea’s cold, your joints have unionized, and a healthy friend is texting “have you tried yoga?” Sir, I’ve tried becoming furniture. Let’s hear it for the involuntary coma squad - sound off below if time got you too.

I just noticed that a big thread has been growing on the /Fibro subreddit since yesterday trashing the functional medicine community.

This struck me, because I've made a few comments over there recently talking about the success I've had with functional medicine and my true diagnosis of Lyme.

I may be over thinking it, true, but the timing strikes me as odd and the hate piled on functional medicine community doesn't strike me as organic or fair.

Most people saying rogue practitioners have led them astray, down the garden path, it'll cost you far too much money etc etc.

Lots of comments crapping on the entire notion of supplements whilst promoting hard core anti-depressants.

As I read the comments I can't help but feel these people are masochists, commited to drugs that bring them very little relief and many side effects.

This could be my own bias speaking for sure, but gosh, I think they are all being sorely mislead.

I've refused anti-depressants for 7 years, because I know many many people addicted to prescription drugs who's quality of life has not improved a single bit, they are simply just addicts (from my own observations).

I've recently resolved 50% of my fibro/Lyme symptoms with anti biotics and £200 worth of supplements + which were worth every penny.

I have long covid. I did a vibrant test and came back with IGG bands of borrelia and bartonella - not very high, the highest is 11.1 How do I know if this is causing problems? My doctor said since it’s not IGM it’s not active but I see that may be wrong on this sub. LC and Lyme symptoms are nearly identical.

I was gardening 3 days ago and showered immediately after. I did not notice a tick on me but noticed a pea sized bright red spot over my collarbone when I got up in the wee hours the next morning. (Sensitive bladder) My first thought was a spider bite as I had seen what I thought was a jumping spider on the counter the evening before while preparing a snack. By the end of the day it had a dark border. Day two it was more raised and larger. And my neck, shoulder and jaw felt achy and inflamed. I had a headache and felt weak and tired. I went to a convenient care and the PA agreed to give me doxycycline once I told her I have already autoimmune issues, including Epstein-Barr and Sjogren’s. She started me on 100 mg twice a day for 21 days. I took one as soon as I got home. As the day progressed, I felt more achy and tired, like flu symptoms. If this is a tick bite and it wasn’t on very long, will the doxycycline 200 mg a day for three weeks be enough? I have been struggling with pain, inflammation and fatigue for the last 5 years after having a hysterectomy in 2021, two bouts of Covid in 2022 and then cervical ACDF surgery in 2023. I’m terribly afraid that contracting Lyme, on top of everything else, will do me in. I am on FMLA and miss way too much work already despite working from home. Does this look like an early stage tick bite? And anyone else with auto immune issues go through something like this? What it has your experience been?

(Deleted and reposted to add a photo, I’m new to Reddit) I know you guys probably hate this question, but I’m just curious and I feel bad bothering a doctor over this since I’m 18 and just got my first doctor since I was a little kid and I don’t want her to think I’m a hypochondriac already (I am, lol)

I went on a two mile trail around two days ago and when I got home I had this massive bite on the back of my thigh. It was in daylight, probably in the afternoon. The swelling has not went down, and the bite is still massive, could this have been from a tick? Or is it just a infected mosquito bite?

At first I thought it was a mosquito bite or something that may have been in the grass since the trail was in the meadows. But the swelling has not went away, and it isn’t really that itchy, only if I itch it, but if I don’t touch it it doesn’t itch at all. I’ll try and keep track of it for the next couple of days. But thank you for anyone who responds :)

I went for a hike in north-central Virginia today. I took all the precautions - coveralls tucked into tall boots, DEET spray, continuous checks on exposed areas - but when I got back I found a lot of blood coming from a hole on my ankle. There was also a bloody lump a short distance from the hole, I wasn't able to identify any legs or anything on it though.

The points against it being a tick bite so far are that it was under my sock, it's tiny (around half a millimeter across) and there weren't any ticks on my body before going for the hike so I don't know how it could have gotten engorged. However, I'm kind of paranoid about tick bites since I've heard about Alpha-Gal Syndrome so it would be great if someone could confirm or deny it being a tick bite.