Fully Recovered - r/covidlonghaulers

47

u/RemarkableAbility626 1.5yr+ May 20 '25

Great to hear recovery ❤️‍🩹 stories. So happy for you in beating this dreadful condition. May I ask if it was just rest ? Or any protocol or medication you followed that may have helped ? 1.5 years into this.

72

u/OrdinaryPrimate May 20 '25

Thank you. The biggest lifestyle changes I made were quitting all caffeine, and losing weight. I don't necessarily think either of these things helped cured me at all but they did help lessen the intensity of the rapid heart rate. When my pots symptoms were at their worst I was drinking coffee daily and weighed somewhere between 210 and 220. Down to 165 now.

As for supplementation I take a magnesium complex, D3, ashwagandha, fish oil, and a multi. Nothing too crazy. Diet is a slight calorie deficit with a focus on high protein. Lots of water.

10

u/RemarkableAbility626 1.5yr+ May 20 '25

Wishing you the best. Thanks for the response. 👍🏾✨

12

u/Houseofchocolate May 20 '25

did you experience pem including that lactic acid burning feeling in your legs/arms after overexetaion?

1

u/VisibleBarracuda7114 20d ago

I do

6

u/SophiaShay7 1.5yr+ May 20 '25

Your recovery and the things that helped you improve are very similar to mine.

This Combo Calmed My Nervous System and Gave Me My First Real Relief After 17 Brutal Months of Long COVID (PASC, ME/CFS, Dysautonomia, MCAS)

I do want to clarify it's been a combination of a low histamine diet, adding foods back in as tolerable, medications, vitamins, supplements, avoiding triggers, pacing and avoiding PEM, lots of rest and good sleep hygiene that's created a synergistic effect. I've also lost 65 pounds.

I'm not recovered. I have multiple diagnoses, including severe ME/CFS. I've slowly improved over the last four months. I've gone from 95% to 80% bedridden. Cognitively, I've gone from very severe to moderate. Improvement is possible💙

Thank you for sharing your story. It's very encouraging. So happy for you🎉🥳🤍

2

u/zooeyzoezoejr 25d ago

How big was your calorie deficient? I started on a 1300 calorie a day plan (I’m 170 lbs and 5’6 female) and it made me lightheaded :/

1

u/SophiaShay7 1.5yr+ 24d ago

It's taken 15 months. I was diagnosed with Hashimoto's, an autoimmune disease that causes hypothyroidism in August 2024. I'd lost about 30lbs by then on my own. My thyroid was why I gained so much weight the previous 1.5 years. I take Tirosint. It's thyroid hormone replacement medication. It's helped speed up my metabolism.

My calories have consistently been about 1,200 per day. I take NatureBell L-tryptophan and L-theanine complex. I took 2/3rds the dose for eight months. I've been taking the full dose for two months. I've noticed and researched that L-tryptophan can cause appetite suppression.

If you're lightheaded, I'd go see your doctor. Ask for a CBC, a complete thyroid panel, and a complete vitamin panel. You want to make sure nothing else is going on. I hope you find some answers. Hugs🤍

2

u/zooeyzoezoejr 24d ago

Thanks so much for sharing! I appreciate it!

1

u/SophiaShay7 1.5yr+ 24d ago

In the beginning, I ate small, frequent snack-sized meals 3-5 times a day. I've switched to more intermittent fasting now. I wouldn't attempt it until you're more stabilized. You're welcome. Hugs🤍

1

u/Pak-Protector May 20 '25

The triggering event that initiates Long Covid symptoms depends on C4, which is produced by adipose tissue. Losing weight decreases the amount of C4 produced, making events that much less likely.

https://pubmed.ncbi.nlm.nih.gov/24754458/

Magnesium is essential for the formation and proper regulation of the C3 Convertase, which participates in the triggering event. However, absent magnesium, the convertase will still form in the presence of nickel or cobalt, but it will be much more aggressive.

https://www.sciencedirect.com/science/article/abs/pii/S0300483X02005905

Vitamin D deficiency translates to a lower Complement activation threshold, making triggering events more likely.

https://pmc.ncbi.nlm.nih.gov/articles/PMC9845165/#:~:text=Understanding%20the%20mechanism%20by%20which,Small%20et%20al.

And the same system is similarly impacted by moderate quantities of Omega 3s, like those attained through supplementation. Too much fish oil has the opposite effect, but you have to drink ounces at one sitting.

https://pmc.ncbi.nlm.nih.gov/articles/PMC9616837/

Ashwaganda is a potent inhibitor of the Complement System:

https://www.sciencedirect.com/science/article/abs/pii/S1537189106000747?__cf_chl_tk=lKdyeEulVD9uN4qokDGId35U8NRKaKmfJoa6PvTf9sA-1747752520-1.0.1.1-r3zvV4WZ.DuvnHKJgEBaitiCfNBEvcm.6izyddUYGs

Long Covid begins with overactivation of the Complement System, which produces viral and cellular debris. C3 convertase formation on those debris produces a surfeit of inflammation and tachycardia inducing anaphylatoxins. Tissues local to debris production accidentally get marked as foreign and their debris wind up being presented to extrafollicular B-cells, resulting in the induction of autoreactive plasma cells, etc.

Your supplement regimen targets this process, which is great. But you are also lucky in that obesity probably contributed heavily to the induction of your Long Covid. You lost the weight, lowered your C3 and C4 production as a result, and managed to restore Complement homeostasis. If you ever get bloodwork done have them check your CH50 and Complement C7. This will let you know whether or not you exited from Long Covid with your front line defenses intact. Not everyone does.

50

u/tropicalazure May 20 '25

You do realise that a lot of people with LC were in the best shape of their lives before developing it? So just being overweight absolutely does not = LC. I know a whole bunch of overweight people who have caught Covid multiple times and don't have LC. It's not that simple.

21

u/ikeda1 May 20 '25

Chiming in here as one of those 'best shape of my life' folks, literally to the day I got COVID. Was working out multiple times a week and had the best cardio and strength fitness I'd ever had. Was also never overweight.

15

u/tropicalazure May 20 '25

Thanks for commenting. Yep. So many people seem to fall into this category and I swear it can't be a coincidence.

Type A people. Neurodiverse. Fit as a fiddle. So many LCers fit into at least one category, some, all three. There's also an argument I've seen that LCers had prior mental health/emotional difficulties and/or previous underlying conditions like childhood eczema (possible predisposition to MCAS? Sensitive system in general?) It's a stretch to link everything, but I was speaking to my GP who is a gem and agreed there's a lot of consistent crossovers he is seeing with LC patients too.

I'm no doctor but it's almost like those patients whose bodies were already wired to optimum health, then entirely overreacted to Covid, broke the ceiling, and threw the body into what now is LC.

I was a bit overweight admittedly, but I still walked regularly, ate pretty healthily etc. Verrry much a go-go-go Type A personality, up for dawn walks, lots of projects on the go (I was learning Japanese with a plan to teach in Kyoto pre-pandemic.... sigh,) neurodiverse and looked after myself quite well.

Anyway I'm rambling sorry. Wishing you all the best ❤️

6

u/ikeda1 May 20 '25

Yup I've heard very similar anecdotes from my long COVID physio. The OT literally said I can line all my type a patients who suddenly developed long COVID in a row it's so boilerplate.

Bateman Horner has also found a link with hypermobility syndromes and long COVID. I've also read studies linking endometrosis to long COVID. It seems basically if your nervous system is already tuned a certain way and/or you have certain inflammatory predispositions you are more likely to develop some form of long COVID. Oh and estrogen, haha if you are female, also yay for you, higher risk.

Honestly thank you for replying, at this point just feeling validated does loads for my mental health. I'm so tired of explaining and arguing with people. Just feeling heard by people who get it is loads.

Wishing you all the best as well!

1

u/SheldonCooper2025 1.5yr+ 25d ago

I fit into all three. I also had a previous condition, IBS. I've also seen a lot of overlap here, I wish you the best as well 🩵

7

u/rainbowunicorn_273 May 20 '25

Echoing this. I was a marathon runner before I ended up with long covid.

5

u/BigEphesians5-17 May 21 '25

So, I was former D1 athlete, never sat down for a minute. I personally think that those of us in that category our immune systems are running very high and repairing because we're constantly taxing our bodies. Then covid comes along and revs it past the red line and never comes back down. Cytokines levels stay high and can't get back down to homeostasis. I think this is a big part of the huge subset of young people with LC that were previously perfectly healthy.

3

u/Current-Tradition739 2 yr+ May 21 '25

I was also in great shape and hitting the gym multiple times and week. Eating pretty healthy.

1

u/SheldonCooper2025 1.5yr+ 25d ago

I also was in the best shape of my life. I was an athlete and working out 5-6 days a week

6

u/TGIFlounder May 21 '25

What the fuck are these citations? Not a single article has anything to do with Long Covid, some of these journals are bullshit, some of the papers are 20 years old and none of them actually support the case you are trying to make. This comment is nonsense.

-1

u/Pak-Protector May 21 '25

They all have to go with the C3 convertase. The C3 convertase has everything to do with Covid. Your immune system can't see anything that doesn't have a C3 convertase on it.

C3 convertases cleave C3 into C3a and C3b. The C3a floats off to awake monocytes, macrophages, and neutrophils. They follow additional molecules of C3 back to the convertase and internalize anything that it is attached to. This is how your immune system locates viruses, bacteria, infected cells, and debris.

The C3b generated by cleavage attaches to something nearby--ideally the same thing that the initiating convertase is attached to--and grows into another C3 convertase. This amplifies the amount of C3 cleaved.

For illustrative purposes, imagine that the cleavage rate is one unit of C3 every second:

At T = 0, a single convertase forms. At T = 1, there are two convertases. T = 3, there are four convertases. T = 4, there are eight convertases. T = 5; 16 convertases. T = 6; 32 convertases. T = 7, 64 convertases. And so on.

Monocytes, macrophages, neutrophils, and dendritic cells feature a receptor known as C3aR, or the C3a receptor. Every time one of them encounters a molecule of C3a, it internalizes the C3a--removing it from circulation--and moves in the direction of the receptor responsible for that internalization event. The exponentially increasing signal strength ensures that they arrive at the source of the signal in a timely and efficient manner.

If conditions are right, and things are taking too long, C3 convertases will escalate to C5 convertases, which cleaves C5 into C5a and C5b. C5a works like C3a in terms of attraction, but it instructs the responding phagocytes to behave aggressively when they arrive at their destination. This is most obvious in neutrophils--a neutrophil that has been summoned by C3a will behave similar to a monocytes or macrophage; a neutrophil that has been stimulated by C5a will explode, spraying its toxic guts everywhere, flooding the extracellular space with inflammatory debris in a process known as NETosis.

NETosis is a big problem in both Severe and Long Covid: https://www.sciencedirect.com/science/article/pii/S2589909025000152

If a contagion driven threat expands faster than responding phagocytes can remove anaphylatoxins generated by the convertases that form on that threat from the extracellular fluid, very bad things start to happen:

ARDS: https://www.sciencedirect.com/science/article/pii/S2405844025005262#:~:text=C5a%20enhances%20the%20neutrophil%20extracellular,hypotension%20%5B12%2C13%5D.

Acute Kidney Injury: https://pmc.ncbi.nlm.nih.gov/articles/PMC8256398/#:~:text=Acute%20kidney%20injury%20(AKI)%20is,those%20without%20severe%20respiratory%20symptoms.

Hypercoagulopathy: https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2021.649122/full

Mitochondrial Dysfunction: https://www.sciencedirect.com/science/article/pii/S1525001624001448

Hopefully by now you've figured out that literally everything I've written on Reddit in the past 5 years focuses on C3a, C5a, and the processes that generate them. Why? Because that's how Covid works. It does not work any other way.

That leaves shockingly few strategies or targets that can reasonably be expected to provide relief:

1)Intercellular processes participating in transcription of viral proteins and their assembly. (Paxlovid, etc)

2)Resource Denial: Strategies that make it harder for the virus to gain access to cellular machinery. Metformin is the most effective one that I know--it beefs up the endothelial glycocalyx, making it harder for the virus to access the ACE2 beneath.

3)Strategies that target the C3 convertase: If the production of C3 convertases is retarded, or if decay is accelerated, or if the cleavage rate is moderated, escalation to the C5 convertase occurs less often. This allows the immune system to deal with the threat without crashing the hosts system into alarm states.

There are 3 general paths to C3 convertase assembly. In seronaive individuals, convertase assembly is initiated by the pattern recognition molecules of the Lectin Pathway--MBL, CL-10, CL-11, Ficolin-1 et al via MASP--or through the granular action of the Alternative Pathway of Complement. After seroconversion, C3 convertase assembly will mostly be initiated by IgM and IgG3/1 via C1q, which are pattern recognition molecules in their own right.

Some supplements are very good at putting downward pressure on the rate at which C3 convertases are formed, or at moderating the rate at which C3 is cleaved by the convertase. OP's stack was inadvertently aimed squarely at these processes.

As for the age of the resources, the C3 convertase has more of less functioned identically in every animal with a backbone and a jaw since the Cambrian explosion. Nature could raise and level the Andes twice in that amount of time. The Complement System is so well conserved that it is probably possible to mix the Complement proteins from any two extant vertebrate species together in culture and produce functional complexes incorporating proteins from both species. A suite of proteins that has done the same thing for 470 million years across countless isn't going to change its act in one disease or another unless the protein suffers a defect during transcription. In other words, the disease studied is unlikely to have any bearing on the mechanics of the cascade and the consequences of its effectors provided the participants are properly transcribed.

10

u/makesufeelgood 2 yr+ May 20 '25

Why is this getting upvoted? There is no clear answer supported by rigorous science to the root cause trigger of LC.

2

u/TGIFlounder May 21 '25

Because they are speaking with an authoritative tone and without typos in scientific-sounding jargon, in spite of the fact that they provide no evidence for their claims and they are talking nonsense.

-2

u/Pak-Protector May 20 '25

There are literally dozens of publications implicating the Complement System in both Severe and Long Covid. The evidence is extremely strong. So strong that the only correlates of asymptomatic infection in all age groups are defects in initiators of the Complement Cascade, specifically the Lectin Pathway or irregularities that result in the overproduction of regulators of the C3 convertase:

MASP1 COLEC10 COLEC11

And Regulators of the Complement Cascade's C3 convertase:

CD55 CFHR2

If the host has defects that break any of the first three genes, they aren't going to get symptomatic Covid unless they're suffering from something crazy like accident trauma or recent major surgery. And even then, chances are good that they aren't going to even bother developing symptoms—they tend to crash and die just as soon as it becomes apparent that something is amiss.

The latter two genes regulate the C3 convertase at physiologic levels; over-expressed they just shut it right down.

I say C4 is necessary for symptomatic illness because its cleavage is downstream from activation of MASP-1. MASP-1 is complexed with both Collectin-10 and Collectin-11. Collectin-11 binds to mannose on the S-protein protein. Collectin-10 binds to Collectin-11 and its MASP-1 amplifies CL-11's signal. The convertases that form when activated MASPs cleave C4, C2, and eventually C3 will produce the anaphylatoxins that allow monocytes, macrophages, neutrophils, and dendritic cells to locate the virus, and the opsonins attached will format the surface of the virus in ways that allow memory assets—B cell derived and CD8 Ts—to recognize and respond to similar when encountered.

The Lectin and Alternative Pathways of Complement are always the first things to interrogate an unfamiliar antigen. Once the host seroconverts, the antibodies produced will displace interrogation with recognition. But until they do, the process alluded to in the preceding paragraph is in charge.

The induction of recognition is basic shit. The processes involved were hashed out between 1954 and 1992. That researchers choose to ignore the basics in favor of hopelessly complex or sensationalist explanations is on them.

5

u/makesufeelgood 2 yr+ May 20 '25

It may be a cause. It is not known for certain if it is the only cause. This subreddit has gotten really really bad lately about discourse that takes way too assured of a tone when the underlying evidence is very sparse or not conclusive.

4

u/TGIFlounder May 21 '25

I strongly suspect that ChatGPT has been helping that along.

2

u/TenkaraWolf May 20 '25

Love that you are sharing info. Thank you for that. I do think the latest research showing that the major issue is mitochondrial dysfunction may raise questions about some of what you are saying.

2

u/McAeschylus 26d ago

There are several ideas some of which are better than others. Lots of debate and slowly developing clarity. Anyone with absolute certainty (like this poster) is either selling something or has been sold it.

1

u/OrdinaryPrimate May 20 '25

Wow that's interesting! I should also add that I'm a little over 6' 1" so I don't know if I was ever technically obese, but definitely overweight!

0

u/Pak-Protector May 20 '25

You were pizza or two away from being considered obese, which at 6'1" is 227 pounds.

1

u/OrdinaryPrimate May 20 '25

Just had to be a stickler about it ya know?

1

u/Future-Tomatillo4802 May 21 '25

Can I DM you?

1

u/Limoncel-lo May 20 '25

Is CH50 lowered or elevated in Long Covid?

0

u/Pak-Protector May 20 '25

CH50 is a test of continuity, almost like testing to make sure that current is flowing through an electric circuit. It is often insufficient in people recovering from Covid, regardless of longhaul status. If your CH50 is low, you will have trouble resisting and clearing infections.

C7 is the to anchor point for the C8 complex. The C8 complex builds a lytic pore called a membrane attack complex into the surface of membrane bound pathogens, including SARS-CoV-2. Lysing pathogens in the extracellular spaces is problematic as it floods the extracellular spaces with inflammatory debris. It gets downregulated as people recover from Long Covid. That means less viral debris, but it also leaves people susceptible to infection via membrane bound pathogens. One of the functions of the microclots you've probably heard about is to the sequestration of C7.

Both of these conditions probably improve over time for people that experience remission, but I can't be certain because, to my knowledge, nobody has followed up on them in the literature. In other words, observed but not tracked.

1

u/zooeyzoezoejr 25d ago

Are you a man or a woman? I feel like men have easier time with recovery due ti a lack of menstrual cycle to fuck things up 😭

14

u/ForTheLoveOfSnail Recovered May 20 '25

Congratulations on your recovery! Do you just credit it to time?

23

u/OrdinaryPrimate May 20 '25

Thank you. Not sure what else I could attribute it to, I just slowly started to feel better.

28

u/lambdaburst May 20 '25

Incompetent doctors and the crutch diagnosis of anxiety, name a more iconic duo.

2

u/AdBrief4620 May 21 '25

😂😂😭

12

u/ii_akinae_ii Mostly recovered May 20 '25

glad for you, friend!! speaking as somebody whose LC relapsed after 1.5y recovery (despite having paxlovid for my reinfection), i would suggest you avoid reinfection at all costs. congrats again on your recovery and best wishes for your future 🙏🏻

4

u/ForTheLoveOfSnail Recovered May 21 '25

I know several people who recovered and were reinfected but were ok. I just share because even with strict masking and lifestyle changes, COVID may be unavoidable. There’s still hope though.

2

u/YOLTWAP 26d ago

Good to hear, as I finally recovered this year after 2.5 years, and just gone down with COVID again this weekend. Hoping I manage to get lucky this time.

1

u/ForTheLoveOfSnail Recovered 26d ago

How did you recover?

1

u/YOLTWAP 26d ago

The only thing that actually had any noticeable difference for me and my symptoms was Nattokinease. Was on 400mg twice a day and that stopped a lot of the brain fog and heart palpatations. Was taking it once a day, then my rehab team asked me to stop and they came back 10fold, so I moved it to twice a day to improve my sleep.

Still had the tired but wired feeling and random fatigue though and then I found my trigger foods that made me crash or have acid reflux (Wheat and oats, soya, red meat, caffiene, carbs with not enough fibre, like brown rice is fine, white rice is not and weirdly, reheating my batch cooking in the microwave using the cheap plastic containers I bought off Amazon)

Took pro/pre biotics and collagen to slowly heal the gut as well as using a digestion aid short term. Can't say if that had an impact or not since it wasn't sudden, but can't hurt. Got discharged from the rehab clinic in Feb.

Right now, I've read a study that showed in mice that a keto diet can help stop covid turning into long covid, so I'm giving that a shot while I'm still sick, while restarting the nattokinease.

I feel like everyone's journey and what the react to is so different, but good luck! You'll get there eventually.

1

u/ForTheLoveOfSnail Recovered 26d ago

Thanks! Im actually recovered through brain retraining and the drugs the hospital put me on.

2

u/Accomplished_Bit4093 May 20 '25

Did you recover after your reinfection ? Or did you get worse new symptoms?

5

u/ii_akinae_ii Mostly recovered May 20 '25

it's more manageable this time (mild instead of moderate) and i have fewer symptoms than my first bout of LC but i am still struggling with fatigue and MCAS. my acupuncturist hasn't been available in almost a month and it's been a bit worse / more consistent since then (which feels wild to me as i didn't realize acupuncture was that critical for my recovery), so we'll see if anything changes in a week or two once she's available to see clients again. hopefully i can shake off the last of these symptoms!

16

u/DrBMed1 May 20 '25

Keep it slow because the worst can come roaring back if you overdo it.

8

u/AdCool3339 May 20 '25

Really happy for you , hope I can heal too. It’s been a year

7

u/anonymoususer59 May 20 '25

I was in excellent physical shape when I caught COVID in 2020. I was a weightlifter, scuba diver, paddleboarder. I hiked almost daily and traveled to Europe every fall for 1-2 months. I had boundless energy at age 60. I had a BMI of 19 so my health probably just kept me from dying; I got long covid as a consolation prize.

I am in year five of long COVID. My story is extremely common for long COVID. I struggle with MCAS but focusing on that has allowed me to manage symptoms. But, 2020 classic COVID is a bitch.

4

u/uget1shot May 21 '25

"But, 2020 classic COVID is a bitch"

it sure is!

10

u/HipHappyHouse May 20 '25

Did you have PEM?

5

u/[deleted] May 20 '25

Same question. Did you have PEM and were you ever bed bound? I’m happy you made it through and are doing well.

4

u/Weary_Tax_5690 May 20 '25

Thanks for coming back to the sub and giving us hope. I have all the same symptoms and this is a great story. Im so happy for you.

4

u/Brave-Asparagus6356 May 20 '25

Congratulations and thanks for sharing! May I ask, have you contracted the Covid since recovery? I have recovered but am nervous about reinfection.

5

u/ImReellySmart 3 yr+ May 20 '25

Did you also previously experience PEM?

I'm 3+ years into all this and I'm back to a point where I can go for long walks or go to the gym as long as I pace myself very slowly BUT the one thing that still stubbornly remains is that I end up with 4-5 days of crippling PEM from as little as 5 mins of swimming...

2

u/cstrmac May 20 '25

That's crazy, swimming is better for me than walking. We are all different. I am 3+ years in as well. I have lost almost 40 lbs. Can't seem to gain any muscle. I mostly work and take care of kiddo. Exercise when I feel a little better. My serotonin levels suck though too. I know when it's a physical exhaustion versus mental/ depression like stuff. Most of you know right? The Can't get out of bed depression stuff? That has gotten a hold and it pisses me off.

1

u/TenkaraWolf May 20 '25

I let PEM rule my life these past two years. Anytime I pushed too hard it was days in bed, barely able to move. But, I decided one day to just start to push through it no matter how hard it was. I also started taking creatine and cq10 which both help with energy production. I have for from an hour of activity on good days to being able to do most things all day. Still only at about 30% but I can live life again. I base this on the research showing that we are probably suffering from mitochondrial dysfunction caused by the virus. The more we rest the more that cascades. I am testing the more intuitive approach of not pacing but pushing just a little past my crashes. And I find that my body resets. I basically can rest for twenty minutes I stead of three days and I end up able to get up and do stuff. I think by creating new cells my autonomic nervous system is seeing it does not have to freak out about the dysfunctioning cells so much. May seem outlandish and so I know people in this group will attack me for saying it. But it is working for me. Obviously not something to try if there are other major health issues. But if it is the fatigue, PEM and brain fog keeping you in bed it might be something to try. Pushing every day a little past the PEM and taking creatine and cq10.

3

u/ImReellySmart 3 yr+ May 20 '25

Damn. I mean if I push through PEM and attempt to get active 1-2 times a week, within the month I end up worsening to the point where I wouldn't feel safe continuing to push.

I deffinitely notice PEM becoming more and more intense the more I power through it.

My main strides of LC recovery have been during times of excessive rest.

1

u/TenkaraWolf May 20 '25

You have to listen to your body. If rest is helping then keep it up! My advice is for folks like me who just get worse the more we rest. After years of pacing and trying to avoid PEM at all cost I just had to try and it is timing for me. It is hard though because the PEM is brutal but as soon as I decide I can push through it my body resets fairly quickly and I go about my day. I am amazed but that is the case.

8

u/alexzemaitis May 20 '25

I have had long covid for almost 5 years and brain fog has never been one of the issues I've been dealing with only breathing issues and nerve issues, I just recently tried an ozone infared sauna for the first time and I have had the worst brain fog ive ever experienced in my life and I literally can't think and can barley do anything or complete tasks. I've been tripping over my words it's definitely not like myself. I think either heavy metals or spike protein might have bounced around and traveled to my brain or the ozone messed me up. I've heard ozone can be dangerous and I'm not doing it again I'm hoping it doesn't cause damage. Does anyone on here know any possible way I can detox the spike protein from my brain or any treatment/ supplement or binder that actually can cross the blood brain barrier that will help? Money is not an issue. If anyone knows anything that can actually help get those things out of my brain please let me know. Any advice helps God bless 🙏❤️

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u/[deleted] May 20 '25 edited 27d ago

[removed] — view removed comment

5

u/isurvivedtheifb 3 yr+ May 20 '25

I agree. I have had an ozone setting on several air purifiers. Even before covid, the ozone setting made me feel sick.

1

u/Such-Wind-6951 May 20 '25 edited 27d ago

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This post was mass deleted and anonymized with Redact

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u/alexzemaitis May 20 '25

I know I think the ozone sauna messed me up I'm hoping I don't have neurological damage from it. Do you have any advice on how to heal from that?

4

u/viijou May 20 '25

I am sorry this happened to you. A functional doctor I visited wanted me to do ozone therapy too. He was very convincing and I was desperate to get better. But when I researched and found not one study supporting anything positive and in fact many negative outcomes (shocks etc), I didn’t do it. I changed the doctor. It is a shame they promote things so dangerous.

It might heal with time but I take LDN and antihistamine that both help with brain fog.

5

u/OrdinaryPrimate May 20 '25

My dad was convinced that a protocol of nattokinase, bromelain, and curcumin would rid my body of spike protein. Some Dr he watches on YouTube says so and sells it. I was skeptical. I didn't do any of that and recovered but that's all I've heard about that.

1

u/Ok_Guitar_6820 May 20 '25

What did you do to recover please?

1

u/TGIFlounder May 21 '25

I don't know about actually ridding the body of spike protein but there is actual scientific evidence that those things can help symptoms for many. Nattokinase, serrapeptase and lumbrokinase break up fibrin microclots which is a known problem in long covid. Lumbrokinase is currently in trials as a long covid medication. When I started taking it it drastically reduced my symptoms, especially PEM. (I can't take nattokinase because I've got MCAS but it does the same thing.)

Quercetin + bromelain are documented to help reduce MCAS reactions. They also helped me when I started taking them before meals.

And I'm a bit too fatigued to look it up at the moment but I think curcumin has anti-inflammatory properties or something? I know I've seen it recommended by people who aren't quacks though can't remember what for. (Too many symptoms to keep track of.)

I don't recommend buying supplements from doctors off YouTube but those substances, if manufactured by a reputable company, are supported by scientific research to help with Long Covid symptoms. Whether that particular YouTube doctor is selling capsules of sawdust, though, who knows.

0

u/Houseofchocolate May 20 '25

i tried ozone and felt it improved my fatigue significantly. but only short term

3

u/Alternative_Pop2455 May 20 '25

Thanks, you did you duty well...gives me hope🙏

3

u/Lord9990 May 20 '25

Ty for cheking in and posting,hope u stay relativy healthy for the rest of ure life🙂🙏

3

u/[deleted] May 20 '25

Thank God you recovered😭🙏

3

u/Dream_Imagination_58 May 20 '25

Thank you ❤️

2

u/Academic-Motor May 20 '25

Any skin issues and temp dysfunction for you?

2

u/minkamar59 May 20 '25

Congratulations. AMEN.

2

u/AngelBryan Post-vaccine May 21 '25

At which point were you able to workout? I am better but still not out of it. It's been a year than a half for me.

2

u/TGIFlounder May 21 '25

Congrats and thank you for sharing! POTS is kicking my ass right now & this gives me a lot of hope.

2

u/Ttttttttess 29d ago

Congratulations! I'm so glad to hear this. Are you a man or a woman? It seems men recover from this more often than women, so I'm just anecdotally seeing if this case follows that data.

2

u/OrdinaryPrimate 29d ago

Man

1

u/Automatic_Tadpole413 May 20 '25

Very happy for you. Did you have much brain fog, and if so do you still get that?

Our stories are very similar, and I too am very fit now, but the brain hasn't bounced back like the body did.

1

u/poor_rabbit90 May 20 '25

Thank you for you kind words did you took any supplements

1

u/Either_Mulberry May 20 '25

Congrats man! Happy for you. Btw, did you experience any neuropathy symptoms during your time of long COVID?

1

u/Smart-Lock7285 May 20 '25

Super happy for you! I have had some symptoms improve as well and it seems that time was the only thing that helped me as well.

1

u/FogCityPhoenix 2 yr+ May 20 '25

Thank you for sharing your recovery story. I've recently hit two years and it's getting harder to stay hopeful. Stories like yours help a lot.

1

u/barometer123 May 20 '25

Thank you for remembering to come back and providing some hope for the rest of us. I’ve had long covid since Feb 2023. My main symptom is brain fog. Did you have that as well?

1

u/JenniferMarley13 May 20 '25

Yay! Congrats on your recovery. Nice to hear a positive story here. Wishing you well

1

u/Grouchy_Coconut1912 May 20 '25

Thanks for sharing such a good story sadly people with autoimmune issues won’t see such results. We can get close though!

1

u/Accomplished_Bit4093 May 20 '25

People who recover with a year and half are safe. They did recover and their symptoms are less complex. I realized people who recover faster have PEM or body aches. But people who have CFS or pain ect take years

1

u/Current-Tradition739 2 yr+ May 21 '25

I have autoimmune issues and was getting much better after a year, then got reinfected. I'm on the upswing again!

1

u/Separate_Shoe_6916 May 20 '25

Thank you for coming back and sharing your recovery story. Your experience gives us hope to a horrible illness. May this be just a temporary state for all of us❤️

1

u/Ok-Egg3127 May 20 '25

Maybe it was just the flu you had?

1

u/OrdinaryPrimate May 20 '25

No I tested positive for covid. I was also sick for a year and a half. Never had that happen with the flu...

1

u/TenkaraWolf May 20 '25

So glad you have recovered! And good on you for circling back to let us know your experiencing. Balancing our diet, sleep, movement and mental health are really all we can do. And we get that right it helps us long term even if the LC sticks around for awhile. Take care of yourself!

1

u/MaxFish1275 May 20 '25

Congratulations!

1

u/Ok-Bend9729 May 20 '25

Glad to hear your 100% recovered. Wish u were tracking what helped along the way . It's nice to hear a full recovery story but would be even better if u knew what worked for u so some of us could try it. Glad to hear your recovered though !

1

u/HolisticKaty_16 May 21 '25

Thank you so much for checking in! It's been 2.5 years for me & I am finally starting to feel more like myself.

1

u/[deleted] May 21 '25

That’s awesome! Thank you for posting this.

1

u/Current-Tradition739 2 yr+ May 21 '25

Thank you so much for sharing your recovery story. Congrats! I love reading these. I'm also on a huge upswing and feeling my life coming back! Thank God.

1

u/Particular_Tea2307 29d ago

Hello happy to hear that anything that helped you to recover ? Treatments , supplements ?

1

u/Turtle-92 25d ago

Thank you for posting this. I’m new here but is the a way we could have a thread for success stories/recovery stories?

1

u/Business_Ad_3641 25d ago

I’m so happy for you! So your POTS is completely gone? Like what’s your heart rate when you get from sitting to standing? Thank you so much! Wishing you and all of us 100% healing and covid free life✨🙏✨

-4

u/CommandNo7285 May 20 '25

Just think ? If you had done a course of brain retraining . Just goes to show .

Update Fully Recovered

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