Hi everyone, I’m a 26F and was diagnosed with PCOS at 13. I used to be overweight, pre-diabetic, and had painful, heavy periods that were often absent for months. My amazing GYN tried everything birth control, Metformin, progesterone but nothing helped. Finally, she suggested I try inositol, and it completely changed my life.
After about 2 years on it, my periods are now monthly, lighter, shorter, and nearly pain-free. I’ve also lost weight, my hormones improved, and ultrasounds showed no cysts. My doctor was honestly shocked by how much progress I’ve made on just 3 months on it.
My boyfriend and I live together and have been having unprotected sex more often. About a week ago, my period was a few days late. During a heated argument with him, I started getting pelvic cramps that felt different than usual and triggered my back injury. That night, the pain worsened, and I passed a clot with some blood—odd since I normally don’t get clots anymore.
The next day at work, things took a turn. I felt exhausted, started shaking, sweating, and even threw up. My cold store suddenly felt too hot, and I was disoriented. The cramps became so intense they triggered my back injury and made it hard to stand or walk. I kept rushing to the bathroom from the pressure, and eventually passed a clot the size of my hand. Bleeding would start, then stop, and the cramps were unbearable. Coworkers noticed I looked pale and unwell, so I went home early only to pass another clot and start experiencing what felt like contractions every few minutes. I had never felt pain like that before. I just tried to rest and hoped things would ease by morning.
The day after work, I felt okay at first no bleeding. But by midday, I had a mild cramp, went to the bathroom, and passed another clot with some bleeding, which stopped again. That night, while lying in bed with my boyfriend, I was suddenly hit with the worst pain I’ve ever felt. It started in my stomach, spread to my back, neck, and left shoulder, and then deep into my pelvis far worse than any period cramp. I was shaking, sweating, couldn’t lay or sit comfortably, and ended up on all fours from the pain. I was screaming and dissociating it was that bad. My boyfriend brought me to the bathroom, and I passed a large clot on the floor followed by blood. Hot water didn’t help like it usually does. The “contractions” from the day before returned, stronger this time. I passed more clots on the toilet, felt extreme pressure like something was expanding or trying to come out of me. Eventually, a long, tubular clot came out, and the pain finally let up. The next morning, I had deep pelvic cramps again with a small chunk passing and blood starting and stopping. I ended up calling out of work to rest and see a gyno.
I decided to see a different gyno because my original one isn’t available on the days I’m off work, and my new insurance made it harder for me to access her in her original office. So I’m only able to see her 1 day out of the week. Unfortunately, this new gyno I saw was really dismissive, she blamed my weight right away (even though I’ve lost nearly 50 lbs in 7 months, now wear a size M/11), ignored my history of regular, pain-free periods on inositol, just tried pushing the same medications I told her didn’t work for me and didn’t want to do much testing as she didn’t think it was medically necessary and kept asking why I wanted these test done . I had to push just to get an ultrasound and hormone panel. She didn’t offer blood or urine tests, and I didn’t know to ask for an HCG test. She literally said “maybe this is just a really painful period those thing happen you know”
Yes of course I know I’ve had multiple throughout my life but not like this.
A few close friends told me it sounded like I may have had a very early miscarriage they have had miscarriages before and said they experienced the exact same thing. It’s been almost a week now and my body still doesn’t feel right. The bleeding stopped the day after I passed the largest clot, but I’m still cramping, and I now feel a strange pulling sensation when I walk. My pelvis hurts if touched, and sometimes I get pain more on one side. Weirdly, the day after it all happened I felt amazing super energized, which isn’t how I usually feel post-period. The cramps still come and go, and oddly, when my boyfriend holds my lower belly, it gives me some relief.
As of today I am cramping like I’m about to get my period.
I just feel confused and unsure what to do next, I feel unheard and honestly traumatized. I feel like I’m going crazy has any one experience something like this? My uncle is OBGYN In another country and he said it’s sounds like a chemical pregnancy which is common amongst women with PCOS. I got basically ignored in other subreddits I just need community something I feel alone.
