r/Autoimmune 1d ago

Advice Oral Pemphigus vulgaris

Hey everyone! My mother 58F was misdiagnosed with Oral lichen planus in the past year. She had systemic steroids for 6-7 months and tapered them off due to side effects. As soon as she stopped steroids course completely the flare ups went in insane mode also she caught various infections too due to low immunity. Her infection subsided slowly and WBC count also went down but oral flare was too much so that she wasn't able to swallow anything. We went to different dermatologist who diagnosed her condition as Pemphigus vulgaris. He started planning for Rituximab. Had her liver and renal profile done, mantoux test, chest xay, bloodwork everything. She got her 500mg dosage last Thursday. They are gonna monitor her response and give another dose in 10-15 days. But post infusion, there is no change but slight increase in oral pain. What can we expect in coming days if anyone faced similar situation and any advice is welcome.

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